I have a letter to share its long but it explains so much of what I go through as well as many others.
Hi All, I'm from Yorkshire UK.i was diagnosed with fibromyalgia, chronic fatigue and ibs in December 2015. Although diagnosed not long ago I have ongoing symptoms and problems with this for the last 10 years. I am still struggling to manage my symptoms and it is affecting all parts of my life in ways that can be so debilitating it's depressing. Doctors have pretty much said nothing more to do other than learn to live with it but I am now struggling to find support from people who understand how it feels.
I am 29 and still in search of an actual diagnosis....even though I have been certain it is fibromyalgia for a few years now.
I want to tell you something about my experience with Fibromyalgia and Small Fiber Neuropathy. First of all, it’s one of those things my doctors never wanted to admit I had. I have been through so SO so many tests, it’s not even funny. The last EMG I did, I had my wife sit in on just so she could see how awful and painful that test is. It’s not fun. It’s not a joke. My pain is real - yet the EMG doesn’t actually show the extent of it.
I suffered with CFS for 15 years and wanted to die. I finally found how to heal myself naturally. It was a combination of physically healing myself with getting off of wheat, sugar, junk food etc. and taking colloidal silver to clear excess yeast, which is at the root of so many illnesses. But almost more important was dealing with why the illness showed up, releasing emotional issues, traumas etc. and stop identifying with being sick and being able to let it go. Even being ill can be a crutch because it is a comfort zone and familiar.
Hello Guys, about 7 Months i have Problems with my body. I have almost every day Headache, Fatigue, Problems with Eyes (dry), especially sometimes i get diffuse Pain it´s like Stabbings, near/under/over Knee,shin pain, especially pain over the cheeks...
So I just found out from my daughter that today is Thursday. I have been in an extreme flare since Tuesday. The hardest thing is that it's my second one in two weeks. After three months of being in remission I have told several people that there is only one way to explain how this feels. It's like being in an abusive relationship with yourself. Your body is beating itself up and there is absolutely nothing you can do about it.
Here I sit on the sofa looking out at the blue sunny sky. I can't move around too much because of a fractured knee so I must continue to stare out the window and wish I could go out. I feel like a prisoner. I feel like a pest. I have needs, things I must do and things that need to be done like getting groceries, and doing laundry. I have a wonderful husband who has been able to drive me here and there, but he works and can't always do all the things that need to be done.
I am new to the Forum because I was recently diagnosed with Fibromyalgia and CFS. I was wondering if anyone had any tips on what they did/how they coped when they were first diagnosed with this illness. I am a very active person so these last months have been very depressing. I was about to start training for a marathon when I woke up one day with constant pain all over. Needless to say, I have not exercised since July. I am looking for any advice, what people did to adjust to their new way of life. Thank you.
Hello All, So apparently I am in the apparently rare minority of being a male with Fibro. I have many questions that I am hoping people on this forum can help me out with..... I suppose my story is similar to others. I have been having unexplained bouts of on again off again pain/unexplained symptoms for 4 years. It started with headaches, leg pains, and extreme IBS type symptoms. I have had several 'flares' over the past few years and I have seen probably 30 Drs, had 100 blood tests, imaging, etc. All producing essentially nothing.