Pissed off.
Submitted by Mikira on Wed, 11/30/2016 - 01:12
I want to tell you something about my experience with Fibromyalgia and Small Fiber Neuropathy. First of all, it’s one of those things my doctors never wanted to admit I had. I have been through so SO so many tests, it’s not even funny. The last EMG I did, I had my wife sit in on just so she could see how awful and painful that test is. It’s not fun. It’s not a joke. My pain is real - yet the EMG doesn’t actually show the extent of it.
Currently, I’m going through a bout of what can only be described as a ‘feels like it’s bruised or on fire or someone smashed it with a hammer’ feeling in my left foot - and this has been going on for about a week now, and that doesn’t even really describe all the feelings that I’ve had with it. And that’s not the only time I’ve felt this - it’s something that is similar but can move from place to place throughout my body without any given notice. I used to joke, “Wow, FMS is fun because I never know where I’m going to hurt next!”
Seriously, one day, I’m complaining about my left foot, the next day it’s my right elbow and I can’t even lift a jug of water back into the refrigerator. Yes, it’s like that, for real. I never know what’s going to hurt from one day to the next, and most of the time I just hope it’s not something major. Sometimes I just have some major muscle spasms, sometimes it’s far worse and I can’t even move. There are days I really don’t even want to get out of bed in the morning.
What really sucks even more is that I’ve told doctors over and over my problems and was turned off over and over. It’s only been in the past couple of years that I’ve been give a ‘half-hearted’ diagnosis, and even then, no one really wants to commit to a diagnosis or work with the right medications for me. Seriously, I test positive for 16 of 18 ‘trigger’ points for FMS and my doctor tested for this while looking it up on Wikipedia for cripes sake - I knew where they were better than she did and cried while she was testing me for them because it hurt every point she touched. WTF is wrong with our GPs???
After my last EMG I was finally given a crap dose of 300 mg of Gabapentin at night. This barely touches my shit. Seriously. This is BS.(BTW, I should say I refused Lyrica because I think that drug is bad news for me and my lifestyle.)
Currently, I’m going through a bout of what can only be described as a ‘feels like it’s bruised or on fire or someone smashed it with a hammer’ feeling in my left foot - and this has been going on for about a week now, and that doesn’t even really describe all the feelings that I’ve had with it. And that’s not the only time I’ve felt this - it’s something that is similar but can move from place to place throughout my body without any given notice. I used to joke, “Wow, FMS is fun because I never know where I’m going to hurt next!”
Seriously, one day, I’m complaining about my left foot, the next day it’s my right elbow and I can’t even lift a jug of water back into the refrigerator. Yes, it’s like that, for real. I never know what’s going to hurt from one day to the next, and most of the time I just hope it’s not something major. Sometimes I just have some major muscle spasms, sometimes it’s far worse and I can’t even move. There are days I really don’t even want to get out of bed in the morning.
What really sucks even more is that I’ve told doctors over and over my problems and was turned off over and over. It’s only been in the past couple of years that I’ve been give a ‘half-hearted’ diagnosis, and even then, no one really wants to commit to a diagnosis or work with the right medications for me. Seriously, I test positive for 16 of 18 ‘trigger’ points for FMS and my doctor tested for this while looking it up on Wikipedia for cripes sake - I knew where they were better than she did and cried while she was testing me for them because it hurt every point she touched. WTF is wrong with our GPs???
After my last EMG I was finally given a crap dose of 300 mg of Gabapentin at night. This barely touches my shit. Seriously. This is BS.(BTW, I should say I refused Lyrica because I think that drug is bad news for me and my lifestyle.)
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