Blogs

Hello all.
New here and torn between writing a typical 'about me' post or simply venting at random.

Maybe ill do a combo. While not the healthiest person on earth, i did ok for many years. The exception being a bad run of depression late teens and twenties. Joining the Army and changing my viewpoint helped a bit. (Persian Gulf war vet)

Never dated as i was too shy but still managed to meet and get married to a woman who is quite remarkable and is a great mother. However things went down hill.

CHRONIC ILLNESS, IT’S ALL IN YOUR HEAD


When a person first experiences issues of illness they are likely to head straight to the doctor. It takes medical professional the better part of 3 months to 1 year to diagnose you anything but wait before you can get a confirmation on any illness. Doctors will try to convince you it is all in you head and give you medications.

Correct in that theory because you are feeling pain in your head and entire body.

Hi! I'm new here and like most of you I'm in pain 105% of the day. I'm joining this forum because I fell like a crazy person when I try to tell 'normal people' how I feel and what I'm going through. Lately, I've been in a funk (my word for really depressed) and can't seem to get out of it. I really don't feel like I can talk to any of my family or friends because its hard for me to express what I'm feeling. They say they understand, but really you can't if you dont have fibro. I used to be a bubbly and outgoing person but now I feel old and boring (im only 25!!).

Hi just wanted to introduce myself, I was first diagnosed with FM 2002 after 4 years of not knowing what was happening to me. 2009 it really felt like I was coming out the other side, was able to go back to work full time and lead a ' normal ' life again.
November 2015 all the symptoms seem to flood back to the extent that now I'm as low as low can be so I've joined this group to try to get support to get me through all this yet again. Thank you in anticipation ro everyone who reads my post xx

hi guys just wanted to know if you guys feel really over relaxed after eating anything (specially carbs) drowsy like you have taken some muscle relaxant..

m i the only one who feel totally drowsy after eating something...
checked my blood sugar, thyroid etc..all seems fine..:-|

I am coming to this support group, because I know a lot of you understand the hardship I am going through and the vicious cycle fibromyalgia causes in your life. Please, if you have a moment check out my go fundme page! I am NOT the time to ask for handouts and feel a little ashamed of this, but it would mean SO much to me and my family if we could get any donations! Thank you again!! *Gentle hug!*

https://www.gofundme.com/27rgga4

Obviously clinical drug trials on humans are a necessity to finding cures and therapeutic drugs. However, there has been a great amount of corruption involved as well; just do an internet search on 'clinical trial corruption' and you will find many papers and articles written on such.

Thank you for allowing me to share on your forum. I, like a lot of posts I've seen, am basically home 24/7 (except for doctor visits) due to pain and fatigue! I am so tired of living like this but am more hopeful that it can change for the better because I don't think I could take it if it got worse!

Looking forward to reading about different treatments, vitamins, etc. that I know nothing about and hoping that they will work for me!!!

I love the positive posts I have seen so far and, again, hope I will be just as positive in the future.

Dextromethorphan (DXM) has helped my fatigue, my cognitive problems and my neuropathy pains. It helps better then any meds i've tried for the last 13 years (of hell, yes it was!). I take 90-120mg a day. There is a stigma attached to it because some young people use it to get high(300+ mg). It's been used in clinical studies for Alzhemers /Dementia, and for pain for decades. Here's a good blog I found on this topic:
https://dextromethorphanblog.wordpress.com/ I tweeted more links recently (4/24/16) @finalgon4pain

i've lived with fibro since before most people ever even heard of it. My primary doc diagnosed me with it but every other doc i saw called it by another name 'soft tissue disorder' neurological disorder', etc... we've heard them all. i was put on opioids and been on them ever since. in addition to fibro, cfs, i also have ms, ra, neuropathy, c.o.p.d., restless leg syndrome, raynaud syndrome, sciatica, and many more....