IsThisForReal
Member
- Joined
- Jul 6, 2016
- Messages
- 27
- Reason
- DX FIBRO
- Diagnosis
- 07/2016
- Country
- CA
- State
- ON
Diagnosed w/ FM yesterday, although I am no stranger to chronic illness.
I have been off work for a couple of years w/ a diagnosis of "severe hypersomnolence" in the absence of any other concrete diagnosis.
After a couple of night time studies, my insurer required more evidence that it was chronic and disabling, so we requested special permission from the government to have more testing done (they only allow a certain amount per year) and it was denied, so we waited it out and did some daytime/night time studies again. The end result was that I didn't have sleep apnea and not quite enough to warrant a diagnosis of narcolepsy, but it was so severe that I was asleep in under a minute most times, day or night and every 45m for 15-20m at a time didn't change that.
I am not sure what the difference is between CFS and "excessive daytime sleepiness" and I was sure it was more like the lassitude ppl talk about in chronic illnesses like MS, but whatever this is, it sure as hell doesn't feel like living.
I cannot function and feel like I am dying. :/
I have been off work for a couple of years w/ a diagnosis of "severe hypersomnolence" in the absence of any other concrete diagnosis.
After a couple of night time studies, my insurer required more evidence that it was chronic and disabling, so we requested special permission from the government to have more testing done (they only allow a certain amount per year) and it was denied, so we waited it out and did some daytime/night time studies again. The end result was that I didn't have sleep apnea and not quite enough to warrant a diagnosis of narcolepsy, but it was so severe that I was asleep in under a minute most times, day or night and every 45m for 15-20m at a time didn't change that.
I am not sure what the difference is between CFS and "excessive daytime sleepiness" and I was sure it was more like the lassitude ppl talk about in chronic illnesses like MS, but whatever this is, it sure as hell doesn't feel like living.
I cannot function and feel like I am dying. :/