IsThisForReal
Member
- Joined
- Jul 6, 2016
- Messages
- 27
- Reason
- DX FIBRO
- Diagnosis
- 07/2016
- Country
- CA
- State
- ON
I am not particularly fond of this moment in time, but I am desperate to know if anyone has found any solutions to this problem.
I overheat CONSTANTLY and have the worst time cooling down. Takes me forever. I drip sweat and despite the air conditioning, I often need a fan blowing directly at me for me to feel comfortable. My mom has been around (also has fibro) and I noticed that this is something she suffers through too, but she's just sort of accepted it as part of her everyday. I, on the other hand, NEED to know if there is any end in sight. She made a comment the other night implying princess status because "it must nice to have a husband who follows you around and aims a fan at you wherever you go". I am really not a difficult person, but he's nice like that and genuinely hates it for me, so does his bit to help when he can.
The following day, we decided to head out to a local street fest for a few hours. I was standing, watching something for 15 or so minutes, after a slow walk from the vehicle and knew I was doomed, as the sun was still up (despite the wind/clouds). I felt all my make up drip off me, then my back started dripping and suddenly (disgustingly) my legs were dripping!
Now I am squirming. I am wearing a long skirt and am desperate not to let it make a pool beneath me. I am scrambling to figure out how to do so discreetly and know that there is no good way to leave the area with all of those people around because I cannot be certain I won't be leaving at least a puddle behind which would quite easily be mistaken for a bladder control problem!
I am already hyper conscious of how unwell I look. I don't even recognize myself in the mirror these days. I have the worst time getting out of the house as it is and so, I cannot let this add another reason to the growing list of reasons I avoid leaving the house I already feel so isolated and that has been super depressing for me.
Anyone?
I overheat CONSTANTLY and have the worst time cooling down. Takes me forever. I drip sweat and despite the air conditioning, I often need a fan blowing directly at me for me to feel comfortable. My mom has been around (also has fibro) and I noticed that this is something she suffers through too, but she's just sort of accepted it as part of her everyday. I, on the other hand, NEED to know if there is any end in sight. She made a comment the other night implying princess status because "it must nice to have a husband who follows you around and aims a fan at you wherever you go". I am really not a difficult person, but he's nice like that and genuinely hates it for me, so does his bit to help when he can.
The following day, we decided to head out to a local street fest for a few hours. I was standing, watching something for 15 or so minutes, after a slow walk from the vehicle and knew I was doomed, as the sun was still up (despite the wind/clouds). I felt all my make up drip off me, then my back started dripping and suddenly (disgustingly) my legs were dripping!
Now I am squirming. I am wearing a long skirt and am desperate not to let it make a pool beneath me. I am scrambling to figure out how to do so discreetly and know that there is no good way to leave the area with all of those people around because I cannot be certain I won't be leaving at least a puddle behind which would quite easily be mistaken for a bladder control problem!
I am already hyper conscious of how unwell I look. I don't even recognize myself in the mirror these days. I have the worst time getting out of the house as it is and so, I cannot let this add another reason to the growing list of reasons I avoid leaving the house I already feel so isolated and that has been super depressing for me.
Anyone?