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Old 10-15-2017, 08:17 PM #75 (permalink)
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Marvis Marvis is offline
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Join Date: 2017
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Marvis Marvis is offline
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Join Date: 2017
City: Ridgetown
State: Ontario
Country: CA
Diagnosed: 05/2016
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 128
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Default Re: Exercise intolerance , how real is it?

Diamond and Tipnatee have you heard of the movie Unrest? It's a documentary about a woman, Jennfer Brea, struggling with ME. She filmed the entire thing from her bed, interviewing other sufferers around the world who were also bed bound. I haven't seen it yet, but she winning a lot of awards for it. I think it's available on itunes now and if you search it up, I'm sure it will be more widely available soon. She mentions being told her illness was 'all in her head' so she forced herself to walk all the way home and ended up bed bound for a very long time. I'm looking forward to seeing it. I think there's definitely a difference there. With fibro, I can still push myself a little, I can exercise a little and if I over exert, I can recover with extra rest. It hurts all the time, but I can do it. I think ME is different.
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diamond (10-16-2017), Tipnatee N (10-16-2017)