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Old 08-02-2018, 10:33 AM #3 (permalink)
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Sienna Sienna is offline
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Join Date: 2018
Posts: 4
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Sienna Sienna is offline
New Member (Say Hi)
Registered Member
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Join Date: 2018
City: San Antonio
State: Texas
Country: US
Diagnosed: 04/2018
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 4
Sienna is on a distinguished road
Default Re: I'm New ... and in pain

The biggest issue with my family is, indeed, a lack of understanding for invisible illness. They see me lounging around the house, and I know that it looks like I'm fine and just lazy. But what they don't get is that the more I do, the more I hurt. But I don't want to lay in bed all day either if I can help it. So I move around when I can .... read a book on the couch, work on the computer at the table, get some lunch, take a nap, help mom fix supper, etc. I know I look perfectly normal to them. It's a difficult balance of not wanting to show pain or complain and wanting to be up as much as possible but also trying to keep the pain and symptoms as mild as possible. They don't get that.
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