View Single Post
Old 08-03-2018, 12:55 AM #5 (permalink)
Sienna's Avatar
Sienna Sienna is offline
New Member (Say Hi)
Registered Member
 
Join Date: 2018
Posts: 4
Sienna is on a distinguished road
Sienna Sienna is offline
New Member (Say Hi)
Registered Member
Sienna's Avatar
Join Date: 2018
City: San Antonio
State: Texas
Country: US
Diagnosed: 04/2018
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 4
Sienna is on a distinguished road
Default Re: I'm New ... and in pain

No, they aren't really educated on it. Because I dealt with all the testings and eventual diagnosis at school (in another state), it wasn't my family that went through it with me -- it was largely the university nurse, my teachers, and my dorm leader. So, I came home with this diagnosis that I'd been learning about for about a month (diagnosed in early April; graduated in mid May), and they really hadn't looked into it when I told them about it.

Sometimes I do want to try to talk to them about it ... show them an article that I think helps people to understand it better, ... I guess my biggest worry with trying that though is the potential of them saying, "We don't believe it's this bad for you" (which I had experienced with a few girls in my dorm, and it was very hurtful). I'm afraid of not being believed again. It's easier to try to hide it and push through it, ... but it's also very lonely.
Sienna is offline   Reply With QuoteReply With Quote