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Old 05-29-2008, 02:42 PM #1 (permalink)
Loriliz
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Loriliz
Guest
Posts: n/a
Default Facial twitching and right-sided perceived weakness

Corny...I know, but I have lurking around and reading for a couple of months now, and figured I should introduce myself.

My journey started about 7 months ago with facial twitching and right-sided perceived weakness. I have had a diagnosis of fibromyalgia for about 20 years, so am thus an hyper-vigilant, hysterical female. I have never medicated for the fibro and really haven't had too many issues. Until this past year.

My doctor referred me to a neuro, and I am seeing one of the best (particularily in ALS) in Canada. He was almost certain I had MS because of some of my symptoms. He sent me for an MRI because he found right-sided problems with deep tendon refelxes (hyper) and myoclonus, with an increased sensory reflex. The MRI did not show MS, but did show a small convexity meningioma (benign brain tumour) in the frontal lobe and some white matter changes. The tumour thing freaked me out a bit, but we are on watch and wait because the cure is worse than the condition at this point. The neuro said it would not be causing the symptoms that I have...bummer, would have been too easy.

He is still not convinced that I don't have MS, so I am going to see another associate of his who is a specialist in Movement Disorders, and then on to a lumbar puncture after that. That's not for a couple of months (August) and things are steadily getting worse - no doubt aggravated by being in limbo. My entire right side is losing strength and always feels "on the verge" of a cramp. I seem to have a permanent charlie horse in my butt and my right leg is obviously decreasing in size compared to my left. Walking can be a challenge because the leg seems to turn into a stilt (very stiff) and then the cramp hits. Occasionally I feel muscle flutters, particularily in the evening. In bed, sometimes my leg "hums". Not numb, but a strange feeling, like TV fuzzies.

Gettng through a whole week at work can be difficult. I become so "tired" of draggin my ass around that I seem to hit a "wall" where it's all I can do to keep myself from closing the door to my office and sobbing. Sometimes I have to leave so I can, I just can't help it. Not just your run of the mill boo hoo, but great whopping keens that make you want to bite a towel to keep yourself from making too much noise. At this point, I honestly have peace with whatever is wrong, even if it's just my fibromyalgia on a tear. Whatever is going to happen...will.

In any event, of course I googled about and found you all, and have since been following your journeys and appreciating the particular wisdom and patience you all show to visitors. I guess I needed to blurt that all out so I don't feel like such a stranger.

I very much appreciate that you are here.

Lori