Thread: my story
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Old 07-03-2008, 08:38 PM #8 (permalink)
wright
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wright
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Hey there

It sure sounds like you've been through a lot. What I think you need to hold onto at the moment, is the EMG and clinical evaluation done by an ALS specialist. If you claim to have atrophy in your leg (a lower motor neuron sign) and it was EMG'd and the EMG was clean, then that is a very good sign. You said that you lost 35 pounds, which is a lot of weight. Is the atrophy just in one leg or both? Is it also in both arms? If so, then it's most likely due to the loss of weight.

Brisk reflexes don't always mean something bad (people can develop brisk reflexes during times of anxiety, for example). Once again, your body has been through a lot, so that trauma can cause all types of problems.

You also say there is a query of an autoimmune disorder. That could certainly cause the symptoms you are having and can linger for quite some time.

I certainly wouldn't be jumping to any conclusions, especially something like ALS. When you start to go down that path, please remind yourself that you were seen by an ALS specialist and were told that it isn't even a consideration.

Hang in there and lean on us if you feel the need.