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Old 08-05-2009, 07:42 PM #1 (permalink)
JUDIEMATUL
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JUDIEMATUL
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Default Anyone on steroids?

I was diagnosed in May 2009 with ALS that started with drop foot a year and a half ago which we thought was originally related to radiation I received due to a diagnosis of bone cancer in my spine 7 years earlier. I have been on a steroid intermittently over the years for fibromyalgia inflamation, even since my ALS diagnosis. I started titrating down last week and noticed that my voice weakened considerably and experienced greater fatigue when I went from 10mg to 5mg. My neurologist says that the steroid should not impact my ALS, but I am noticing that I am weaker without it. Has anyone had a similar experience or have any insight?