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Old 08-14-2009, 06:14 PM #19 (permalink)
BethU
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BethU
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Emma ...

a) bulbar onset almost always starts with slurred speech and swallowing problems.

b) the skin does not thin out in bulbar ALS. Again ... you have lost almost 50 pounds in three months. That is a huge amount of weight to lose suddenly ... for a man or a woman, tall or short, thin or fat. Have none of your doctors commented on the weight loss? Is nobody concerned? Have you been dieting or have you been unable to eat following the flu? Are you still losing weight?

c) The face changes enormously when you gain or lose weight. Naturally your face will look different now than before you lost the weight.

d) You clearly have some serious health issues to deal with. I sincerely hope that you will run into someone who takes your symptoms seriously, and gets you the help you need.

Last edited by BethU : 08-14-2009 at 06:40 PM Reason: removing sarcasm because of CJ's kind answer.