Hi all!
First I apologize if I come across brusque or incompetent, I have lost a lot of my verbal language and some of my written so sometimes I come across differently than I intend to.
I am 31 years old and have had these symptoms for about two years. I've been to the doctor and had lots of bloodwork, neuropsych testing, etc. with no answers yet. Still seeking an official diagnosis.
Mainly horrible brain fog to the point that I've been diagnosed with aphasia, I have lost a lot of my spoken language. Can still communicate if I have my husband around to fill in the words I drop or miss. The thing is I am so young and aphasia has to have a cause, we just don't know yet. No stroke, TBI, or tumor.
Terrible fatigue, attributed to that fact I have five kids. I mean who wouldn't be fatigued! LOL. But seeing others with large families has me thinking that this isn't normal. I can barely move.
Pain is weird - not all-over, but sharp stabbing pains in joints, like when you've got the flu. Mostly in the back of my pelvis and my shoulders. This is almost constant.
My hands and feet always feel swollen for no reason, and I get lots of tingly feelings in my limbs like they're asleep.
I lose my balance constantly and cannot bend over past my waist without falling.
I have a service dog in training due to all of this, as suggested by my doctors. My dog has been an enormous help even though she isn't fully trained yet. We can't go in public without permission since she isn't fully trained but most of the places I go have been very accommodating. My dog seeks help if I am disoriented, picks up things I drop or can't get to, and braces me if I start to lose my balance. She is my godsend!
Its so hard to deal with all this because I used to be very active and now I'm so limited. This came on gradually but has been so much worse in the last 6 months or so. I'm hoping I can get answers soon, even if there is no treatment, not knowing what is happening is so hard and depressing at times.
I sought out this community because I wanted to find people who understand. I feel very certain that I must be dealing with something like fibromyalgia or chronic fatigue but so far we just have no real answers.
Nice to "meet" you all!
First I apologize if I come across brusque or incompetent, I have lost a lot of my verbal language and some of my written so sometimes I come across differently than I intend to.
I am 31 years old and have had these symptoms for about two years. I've been to the doctor and had lots of bloodwork, neuropsych testing, etc. with no answers yet. Still seeking an official diagnosis.
Mainly horrible brain fog to the point that I've been diagnosed with aphasia, I have lost a lot of my spoken language. Can still communicate if I have my husband around to fill in the words I drop or miss. The thing is I am so young and aphasia has to have a cause, we just don't know yet. No stroke, TBI, or tumor.
Terrible fatigue, attributed to that fact I have five kids. I mean who wouldn't be fatigued! LOL. But seeing others with large families has me thinking that this isn't normal. I can barely move.
Pain is weird - not all-over, but sharp stabbing pains in joints, like when you've got the flu. Mostly in the back of my pelvis and my shoulders. This is almost constant.
My hands and feet always feel swollen for no reason, and I get lots of tingly feelings in my limbs like they're asleep.
I lose my balance constantly and cannot bend over past my waist without falling.
I have a service dog in training due to all of this, as suggested by my doctors. My dog has been an enormous help even though she isn't fully trained yet. We can't go in public without permission since she isn't fully trained but most of the places I go have been very accommodating. My dog seeks help if I am disoriented, picks up things I drop or can't get to, and braces me if I start to lose my balance. She is my godsend!
Its so hard to deal with all this because I used to be very active and now I'm so limited. This came on gradually but has been so much worse in the last 6 months or so. I'm hoping I can get answers soon, even if there is no treatment, not knowing what is happening is so hard and depressing at times.
I sought out this community because I wanted to find people who understand. I feel very certain that I must be dealing with something like fibromyalgia or chronic fatigue but so far we just have no real answers.
Nice to "meet" you all!