Mike63
New member
- Joined
- Feb 3, 2017
- Messages
- 7
- Reason
- Undiagnosed
- Diagnosis
- 11/2015
- Country
- US
- State
- CO
I am suffering with terrible pain and disability. I've recently been diagnosed with fibro but other Drs are not in agreement.
About 4 years ago i developed severe tinnitus and was placed on a variety of antidepressants. I began to experience pain while taking Cymbalta and was cold turkey'ed off this in April 2014 and placed on Xanax. In the summer of 2014 I began to experience neurologic deficits and more widespread pain. Gabapentin was added. Drs denied the drugs were to blame. A year ago I was able to taper successfully off of the benzo and gabapentin and began to improve significantly. Unfortunately last Jan I contracted shingles and had to reinstate gabapentin. Ive never been the same since. At 900 mg Gabapentin I was unable to walk. I took the last dose after a careful taper 30 days ago and although I'm horrific pain I was able to actually walk/jog combo about 3 miles this week.
I have pain my buttocks and between my shoulder blades so severe it has driven me to becoming unconscious. My upper left trapezius is so tight it is swollen along with my levator scapula, left jaw and scalene muscles in my neck. I get severe bodywide burning attacks that last for several hours to an entire day. My hands and forearms burn terribly. My left scapula burns so badly I cannot function. I have had MRIs of entire spine, brain and pelvis. I have tendon damage in my right forearm and left cheek. I cannot respond to weight or resistance training, my muscles ball up and swell even with the lightest weight. My pelvis is constantly twisted and PTs and chiropractors say they have never seen anything like this. I have taken every pain killer and muscle relaxer known to man and don't get even 1% relief. I have taken enough CBD oil and medical cannibis to incapacitate a biker gang and feel zero effects from it. Lyrica low dose produced hallucinations. I'm on 10mg Elavil and can barely see to drive and have skin rashes from it. I'm so fatigued and weak most of the time that I'm becoming housebound. I try to force exercise but it is very difficult.
I'm entering the fourth year of suffering. Mayo Clinic says I have central sensitization. My neurologist says she has never heard of that. My depression is very severe along with anxiety. Osteopath diagnosed fibro and wants me to do the Guaifenesin protocol and the Gupta Amygdala Retraining program. Another osteopath says its not fibro but myofascial pain syndrome and another Dr says its neurologic damage from medications and I'm suffering a protracted withdrawal syndrome that could take 2 years to resolve but will not admit that publicly or put it in my records.
I'm at a loss and the level of suffering is not sustainable. The very drugs that you would prescribe for fibromyalgia are the very same drugs that have caused it if that is what I have.
Has anyone heard of anything like this?
About 4 years ago i developed severe tinnitus and was placed on a variety of antidepressants. I began to experience pain while taking Cymbalta and was cold turkey'ed off this in April 2014 and placed on Xanax. In the summer of 2014 I began to experience neurologic deficits and more widespread pain. Gabapentin was added. Drs denied the drugs were to blame. A year ago I was able to taper successfully off of the benzo and gabapentin and began to improve significantly. Unfortunately last Jan I contracted shingles and had to reinstate gabapentin. Ive never been the same since. At 900 mg Gabapentin I was unable to walk. I took the last dose after a careful taper 30 days ago and although I'm horrific pain I was able to actually walk/jog combo about 3 miles this week.
I have pain my buttocks and between my shoulder blades so severe it has driven me to becoming unconscious. My upper left trapezius is so tight it is swollen along with my levator scapula, left jaw and scalene muscles in my neck. I get severe bodywide burning attacks that last for several hours to an entire day. My hands and forearms burn terribly. My left scapula burns so badly I cannot function. I have had MRIs of entire spine, brain and pelvis. I have tendon damage in my right forearm and left cheek. I cannot respond to weight or resistance training, my muscles ball up and swell even with the lightest weight. My pelvis is constantly twisted and PTs and chiropractors say they have never seen anything like this. I have taken every pain killer and muscle relaxer known to man and don't get even 1% relief. I have taken enough CBD oil and medical cannibis to incapacitate a biker gang and feel zero effects from it. Lyrica low dose produced hallucinations. I'm on 10mg Elavil and can barely see to drive and have skin rashes from it. I'm so fatigued and weak most of the time that I'm becoming housebound. I try to force exercise but it is very difficult.
I'm entering the fourth year of suffering. Mayo Clinic says I have central sensitization. My neurologist says she has never heard of that. My depression is very severe along with anxiety. Osteopath diagnosed fibro and wants me to do the Guaifenesin protocol and the Gupta Amygdala Retraining program. Another osteopath says its not fibro but myofascial pain syndrome and another Dr says its neurologic damage from medications and I'm suffering a protracted withdrawal syndrome that could take 2 years to resolve but will not admit that publicly or put it in my records.
I'm at a loss and the level of suffering is not sustainable. The very drugs that you would prescribe for fibromyalgia are the very same drugs that have caused it if that is what I have.
Has anyone heard of anything like this?