Old 05-03-2017, 06:04 AM #1 (permalink)
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Question Fibro or ?

Hi everyone! I was diagnosed with Fibromayalgia in January this year.. even though it had been mentioned before I was diagnosed too I always seemed to think it was something else. I've been trying over the last few weeks to really pay attention to my pain and where it is and I've noticed it's in my hands and fingers, my wrists, my feet and my knees.. I thought Fibromayalgia pain was different to this and it was all over ? I'm very confused at the moment I was hoping my doctor would refer me back to rheumatology but she doesn't seem to want to I feel that I missed a lot out in my first appointment with the rheumatologist can anybody help ? I'm not sure what I expect I understand as with most things symptoms are different in each person but I don't seem to get any answers from my doctor and I just can't get rid of this feeling that it's something else or something as well as ?
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Old 05-03-2017, 12:30 PM #2 (permalink)
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Default Re: Fibro or ?

For a long time, and quite honestly even now, I also doubted my fibromyalgia diagnosis. But that was more due to the fact that everyone and anyone with the tiniest amount of 'unexplained pain' was being diagnosed with it at the time. There I was unable to even get out of bed, having had to quit my job and put an end to a successful career, with no energy for things I enjoyed etc. and there they were other patients going about their day, with kids, holidays, hobbies and their fibromyalgia. It just did not add up. (again, I don't want to say these people did not have real complaints, but they could continue on 'living', whereas I stopped living and have been 'surviving' ever since.)

For me, some symptoms make it for sure that the diagnosis was right. Waking up unrefreshed, fatigue/tiredness/exhaustion and weird aches and pains all over my body (both in muscles, joints, tendons...even in my ear, jaw, eyes etc.). I was also diagnosed with IBS many years ago, so things just seemed to add up for me.

So do you only have pain? what are your other symptoms? You are doing the right thing by paying real close attention to your body. I also believe it is important to judge your complaints in a stress-free environment. Take a few days off, do things you enjoy, take it easy, and see how you feel. With that information, the doctors will determine what you have.
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Old 05-03-2017, 01:34 PM #3 (permalink)
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Default Re: Fibro or ?

Thank you so much for replying. I have many other symptoms..

- Joint pain
- Swelling in hands, feet and knees
- Stiffness mostly in the morning it will take me a while to get going and my hands are getting a lot worse this way I can't bend my fingers and seem to lose my grip a lot
- My skin feels warm around the swelling sometimes
- Fatigue
- Chest pains and shortness of breath

There are many more but these are the worst for me at the moment. Sometimes I feel better for a week or so.. but when it's bad it's extremely bad I'm finding it harder and harder to walk the pain in my feet is unbelievable also noticed a few lumps in my feet and on top of my hand. I did have an X-ray which showed an effusion in my knees I also had plenty of blood tests which came back showing a positive rheumatoid factor and raised CRP I think it was among other things I can't quite remember.

I have been on many tablets for this including Duloxetine, Amitriptyline and Gabapentin.. I just started Pregabalin but none of these seem to have even touched my pain at all they've done nothing..

I'm not sure why I can't accept my diagnosis.. something is just telling me it's more :/ I just don't know where to go from here I feel like my doctor isn't paying too much attention to what I'm saying..
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Old 05-03-2017, 01:42 PM #4 (permalink)
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Default Re: Fibro or ?

* CRP or CCP ? Not sure exactly which oops
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