Old 09-22-2006, 09:34 PM #1 (permalink)
pounne
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pounne
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Default Fibromyalgia

Hi im new to this site i dont know if im doing this right but i have questions to ask maybe someone could help me out here my doctor told me i had fybromalgia but i dont know if i should trust him i had a car accident 4 years ago i have burning in my muscles in the neck shoulders and arms i lost my strengh i cant lift up nothing heavy cuz its starts burning i just got diagnosed with ibs syndrom plus i am very tired and im always in pain does anyone have this symptoms im getting very frustrated because i went for xtrays mri and they cant find nothing do you think i should go see a rheumotologist do you think he would know what i have sometimes i have a hard time to get out of bed cuz my muscles feels so stiff and i have lumps in my back my message therapist says its scar tissue i dont know what to beleive no more so anyone please if you know what i have let me know thank you

Last edited by David : 09-23-2006 at 04:59 PM
 
Old 09-23-2006, 08:40 AM #2 (permalink)
Sunshine
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Hi, Pounne. I have had fibromyalgia for 6 years. I also developed it after a car accident. I have a herniated disc in my neck that gives me trouble also. I am stiff and in pain everyday. I have muscle spasms often especially in the neck, back, and hip area. I can't do anything repetitive because of the fatigue and it increases my pain and I also feel weaker that I did before the accident. My arms especially feel weak. I am on morphine, muscle relaxers, and other meds. Some people have milder cases. My muscles hurt all the time espesically the trigger points. My pain has been sharp, stabbing, and aching kind of pain. The last few months, my hands have been falling asleep and I have some burning feeling with that mainly when sleeping. My doctor thinks it may be the way I sleep with my hands folded. I am not sure if it is fibromyalgia related. I just bought wrist braces for that to see if that helps. I have been to a neurologist to rule out other things but my rheumatologist and pain specialist confirmed the diagnosis. So it is possible that you have fibromyalgia. I would recommend reading as much as you can about fibromyalgia. In the past, it was hard for people that have it to even be diagnosed. Some doctors still don't believe in it. They are not sure what causes it. Physical therapy can help. I hope this helps a little. It is best to see a doctor who specializes in it. Take care. If you have any other questions, I will try to help. Sunshine
 
Old 09-23-2006, 11:14 PM #3 (permalink)
pounne
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Default Hi sunshine

well im glad that i found someone with some symptoms like mine sometimes i feel like nobody beleives me and they think its all in my head but i know its not the pain is to severe well i will take your advice i have a doctors appointment soon and i want to see a rheumotologist maybe he will no more about this oh and i have some more questions do you get lots of burning in your muscles and do you get lots of headache thanks for replying at least i know now that there is other people out there that is like me thank again
 
Old 09-24-2006, 07:54 AM #4 (permalink)
Sunshine
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Hi, Pounne. The only burning feeling I have is in my hands. I do get headaches often. If you want, you can send me private messages about my experience with fibromyalgia. My husband might have a motor neuron disease. That is why I am on this site. He has some symptoms I can relate to, so I can see why you found this site. I will be glad to help you any way I can. I don't know if the forum would want us talking about fibromyalgia all the time. That is why I suggested the private messages. Take care.
Sunshine
 
Old 09-24-2006, 11:35 PM #5 (permalink)
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Hey, I would maybe try if you haven't already (neuro. spec )I have some of those symptons and I have ALS diag. going to ALS spec. next My doctor friend said that sometimes doctors give up to quick and name it fibromyaliga..janf
 
Old 10-03-2006, 08:17 PM #6 (permalink)
pounne
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hi the stuff you told me to take is it good for burning pains and heart beats did u try it yourself and how did it go let me know please i might try that
 
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