Old 11-26-2014, 12:30 AM #1 (permalink)
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Default Getting Diagnosis?

Hello everyone!

I'm new to the forum! I've had some sort of chronic pain issue since I was 14. I've been to a million doctors and been tested for pretty much everything to do with chronic pain (arthritis, lupus, celiac etc..) This past summer I went to a doctor subbing in for my regular gp and she was pretty certain I have fibromyalgia. I finally felt like I was getting on the right track after 8 years of on and off terrible pain and exhaustion. However, my regular gp came back and now she won't even really discuss fibromyalgia as a possibility at all. Has anybody been through this? I know that it is a reasonably new illness to be recognized in the medical community, but after being to a physiatrist, rheumatologist and my regular doctor, none of them really seem to recognize fibromyalgia as a viable illness. Anyway, it could be possible of course that this is not what I have, but all my symptoms fit and not with anything else. Your stories would be appreciated!
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Old 11-28-2014, 08:05 AM #2 (permalink)
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Default Re: Getting Diagnosis?

It's a very old illness , but it's only been the last ten or so years Dr have even started to understand this. One day years from now ppl will say omg they throught fibro was all in your head. But until then find a Dr who does believe u. I can't over state the need for an understanding Dr.
Don't give up and stand your ground, find the right Dr will make life a lot easier for u, don't suffer because your Dr is ignorant .good luck xx
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Old 11-28-2014, 10:54 PM #3 (permalink)
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Default Re: Getting Diagnosis?

thanks your response means a lot. I hope to be seeing a new doctor in the next few weeks
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Old 11-28-2014, 11:45 PM #4 (permalink)
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Default Re: Getting Diagnosis?

Yes don't give up! It's very frustrating out there though. Honestly you have to be your own advocate..and also write everything down..from pain to dirt to appointments to meds tried...speaking from experience it has saved me more than once.
Peace and hugs��
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Old 11-29-2014, 09:36 AM #5 (permalink)
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Default Re: Getting Diagnosis?

Maybe you gp should read all the studies that show the variations in brain scans between normals and fibromites. This is NOT all in our heads. Good luck...Mike
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Old 11-29-2014, 10:30 AM #6 (permalink)
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Default Re: Getting Diagnosis?

Moran freeman has fibro.when a Dr tells u its not real ask them if they would say that to him if he was standing there and not u.
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Old 11-30-2014, 09:16 AM #7 (permalink)
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Default Re: Getting Diagnosis?

Hi, I'm from toronto as well. I've been dealing with my GP on this for a few years now and after my last flare up he mentioned that I may have Fibromyalgia and refered me to a Rheumatologist in the Bay and College area. Took a while to get an appointment as I'm sure you know with our system but after a long and brutal examination she said I definetly have Fibromyalgia. I now have an appointment at the Rothbart pain clinic and I'm really hoping that helps! Since the diagnosis my doctor has been much more empathetic and said we'll get through this and he will do everything he can to get me the help I need. This whole process has been very frustrating and trying. At least now he knows the pain is real and not psychosematic as he was originally thinking. I run a very stressful business so that is a concern but paring anything down can cost me tens of thousands of dollars. I'm really hoping now that I've been diagnosed the help is on its way that doesn't involve popping pain killers just to be able to get through the day.

Good luck with everything and it may just be you went to the wrong Rheumatologist. Believe me I know how frustrating it is. I'm still in a bit of disbelief myself but at least I no longer send hours scouring the Internet trying to figure out what Illness I have and if it's something that's going to cost me my livelihood or worse. Not knowing is almost as bad as being sick in the first place.
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Old 11-30-2014, 09:50 AM #8 (permalink)
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Default Re: Getting Diagnosis?

Since it is totally symptomatic it is very difficult to diagnose. I went through years of suffering. I was tested for EVERYTHING that can be tested to no avail. Finally my GP told me I needed to see a shrink to help me deal with growing old. I interviewed 25 doctors before I set an appointment with one. He said if I thought I had Fibro he would prescribe Effexor XR as it had helped some according to researcher. It worked for a few months but then stopped. He changed me to Cymbalta & it has been working for 2 yrs. He never DIAGNOSED me though. My new GP just rolled his eyes at me when I explained my symptoms but he continued my Cymbalta. After he read my medical records he agreed "It appears to be a symptomatic disorder that MAY have immune suppressive attributes." That was a HUGH admission IMO.
Stay strong & don't let them tell you otherwise.
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Old 12-08-2014, 10:56 PM #9 (permalink)
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Default Re: Getting Diagnosis?

My Gp also had to rule out everything else before sending me to a Rheumatologist. I was then diagnosed with Fybromyalgia. It was almost a relief when he told me. I knew it wasn't all in my head. I've since had to leave my job because of it!
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Old 12-09-2014, 03:54 PM #10 (permalink)
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Default Re: Getting Diagnosis?

Hey Harbinger70, whats the name of the rheumatologist you saw at bay and college? I would love to see if I could get an appointment with them. Thanks everyone so much for sharing your stories, figuring out what is wrong with me has been extremely frustrating as you all know. I think whats making it so hard for me to get my diagnosis because I'm flexible (I used to dance) and the rheumatologist and physiatrist both just said that was why I was in pain and seemed to just ignore all of my other symptoms. Has anyone else been told this? I'm really not that flexible and definitely don't have Ehlers Danlos or anything like that. I know what you mean lbondy by saying it is a relief to just know that it is fibro. Thanks again everyone.
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Old 12-15-2014, 09:23 AM #11 (permalink)
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Default Re: Getting Diagnosis?

Hi mshears,

Sent you a private message with the details. Like any specialist though you need a referral. Our health system has its benefits but it can e very hard to get a second opinion. I'm off to the pain clinic this week and we'll see how that goes.
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