Old 06-18-2017, 10:51 AM #1 (permalink)
Tipnatee N's Avatar
Member
Registered Member
 
Join Date: 2017
Posts: 150
Tipnatee N will become famous soon enough
Tipnatee N Tipnatee N is offline
Member
Registered Member
Tipnatee N's Avatar
Join Date: 2017
City: New york
State: New york
Country: us
Diagnosed: 11/2012
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 150
Tipnatee N will become famous soon enough
Talking Hypohidrosis ( absent sweating) in fibromyalgia

One of my symptom in fibro is hypohidrosis , I really can't sweat at all normally. The only time I sweat is during my night sweat caused by sleep anxiety and sleep disturbance. Or just a feeling of sweating because my hair pores are being force opening to release heat on top of my head while eating hot chili peppers, (that's why I eat them to relieve migraine).

Although it's sounds good for the reason of no body odor or no underarm sweat problem like other normal people. I can't relieve heat out of my body through my skin. I can easily get heatstroke plus panic attack from it. Another word, it could very well be the symptom that can kill me during summer heat ( literally).

I wonder if all other fibro people who suffer from the heat similar way like I do also maybe hypohidrosis? Cause I get painful burning skin mostly on the knees and joints first then the forearms and thighs, back side and neck, chests from times to time and hips. I panting like a dog when it happen which cause me to hyperventilating and that's why I can easily get panic attack from it. I usually wipes my self with cold water towels, I recently learn how to use cold shower or cold bath in the correct way which is lukewarm first then slowly turn to cold. Otherwise I would sometime ended up with a summer cold fever if I'm not careful. So since I can't sweat , high temperature fever will happen very easily with me. I can't take medication for it since it cause dry mouth , and dry mouth with me mean continuingly episode of panic attack during awake and during sleep so ice packs, ice bath , ice towels would probably have to do for now.

Does these sound familiar to you?

The tests for Hypohidrosis involving electro zapping ( or see if you pores can produce sweat) and pick your skin off for skin biopsy ( they'll cut you) . So if waiting for this test is making you sweat then good news! You might not have Hypohidrosis

Last edited by Tipnatee N : 06-18-2017 at 11:13 AM
Tipnatee N is offline   Reply With QuoteReply With Quote
Old 06-18-2017, 12:45 PM #2 (permalink)
Sabrina's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 15
Sabrina is on a distinguished road
Sabrina Sabrina is offline
New Member (Say Hi)
Registered Member
Sabrina's Avatar
Join Date: 2017
City: Winnipeg
State: Manitoba
Country: CA
Diagnosed: 08/2013
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 15
Sabrina is on a distinguished road
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

Hello! I also experience something like this. I find that i get very hot in the heat or while running around at work, but I dont sweat. Instead, i feel tight chested and when i raise my arms a bit to punch in orders (im a server) they get extremely tired and i feel like i cant catch my breath. This makes it very hard in the summer and at work but the only thing ive found to work is ice water, and lots of it. Ive always just though that this is a part of fibro, maybe i should bring it up to my doctor?

The thing is i do sweat, but more so when i'm nervous or down with a fever, but i don't seem to sweat when im hot to cool myself down. But i usually reach a point a couple hours in when i sweat a little bit and i find some relief.
Sabrina is offline   Reply With QuoteReply With Quote
Old 06-18-2017, 01:01 PM #3 (permalink)
Tipnatee N's Avatar
Member
Registered Member
 
Join Date: 2017
Posts: 150
Tipnatee N will become famous soon enough
Tipnatee N Tipnatee N is offline
Member
Registered Member
Tipnatee N's Avatar
Join Date: 2017
City: New york
State: New york
Country: us
Diagnosed: 11/2012
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 150
Tipnatee N will become famous soon enough
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

You should Talk to your doctor. It's not that uncommon. I've alway been the type that doesn't sweat a lot growing up but I did sweat before. With fibro on full blown strength I completely stop sweating. It's like I was cooking my self in the oven. Skin rash can happen but since it gets extremely itchy and stingy like lots of ants were biting me at the same spot , I normally hurry up and ice it before the rash breakout. Cool scent like peppermint, eucalyptus, menthol, I use a lot to claim me down before so I can drag my self to the nearby cooling destination. I can't get close to other people skin ( can't get a hug ) cause I was too hot! So mentally hug xoxo. Please stay cool.
Tipnatee N is offline   Reply With QuoteReply With Quote
Old 06-18-2017, 09:00 PM #4 (permalink)
Sabrina's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 15
Sabrina is on a distinguished road
Sabrina Sabrina is offline
New Member (Say Hi)
Registered Member
Sabrina's Avatar
Join Date: 2017
City: Winnipeg
State: Manitoba
Country: CA
Diagnosed: 08/2013
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 15
Sabrina is on a distinguished road
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

Thanks! I will forsure bring it up! Especially because it's effecting me at work. I really hope that you can find some form of relief!

Good luck! ☺️
Sabrina is offline   Reply With QuoteReply With Quote
Old 06-19-2017, 01:52 PM #5 (permalink)
Tipnatee N's Avatar
Member
Registered Member
 
Join Date: 2017
Posts: 150
Tipnatee N will become famous soon enough
Tipnatee N Tipnatee N is offline
Member
Registered Member
Tipnatee N's Avatar
Join Date: 2017
City: New york
State: New york
Country: us
Diagnosed: 11/2012
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 150
Tipnatee N will become famous soon enough
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

I think most relieve are not hard to find , but to doing it while it's happening is tough to get it right. Sometimes it hit like a heart attack and my mind has gone completely blank I've forgotten what I should do. ( also bad fibro often hit at the same time) So if I'm at home I written on the board on the wall of what I should do first . They are selling the instant ice cold wrap ( without ice) you can buy in a small roll for when You're outside. I'm also thinking of buying the ice jacket with ice pack pockets from back to front. Or just make one.
Tipnatee N is offline   Reply With QuoteReply With Quote
Old 06-22-2017, 05:45 AM #6 (permalink)
VanGogh's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 89
VanGogh is on a distinguished road
VanGogh VanGogh is offline
New Member (Say Hi)
Registered Member
VanGogh's Avatar
Join Date: 2017
City: Jupiter
State: FL
Country: USA
Interest: I have questions about Fibromyalgia and/or chronic pain.
Posts: 89
VanGogh is on a distinguished road
Cool Re: Hypohidrosis ( absent sweating) in fibromyalgia

Quote:
Originally Posted by Tipnatee N View Post
One of my symptom in fibro is hypohidrosis , I really can't sweat at all normally. The only time I sweat is during my night sweat caused by sleep anxiety and sleep disturbance. Or just a feeling of sweating because my hair pores are being force opening to release heat on top of my head while eating hot chili peppers, (that's why I eat them to relieve migraine).

Although it's sounds good for the reason of no body odor or no underarm sweat problem like other normal people. I can't relieve heat out of my body through my skin. I can easily get heatstroke plus panic attack from it. Another word, it could very well be the symptom that can kill me during summer heat ( literally).

I wonder if all other fibro people who suffer from the heat similar way like I do also maybe hypohidrosis? Cause I get painful burning skin mostly on the knees and joints first then the forearms and thighs, back side and neck, chests from times to time and hips. I panting like a dog when it happen which cause me to hyperventilating and that's why I can easily get panic attack from it. I usually wipes my self with cold water towels, I recently learn how to use cold shower or cold bath in the correct way which is lukewarm first then slowly turn to cold. Otherwise I would sometime ended up with a summer cold fever if I'm not careful. So since I can't sweat , high temperature fever will happen very easily with me. I can't take medication for it since it cause dry mouth , and dry mouth with me mean continuingly episode of panic attack during awake and during sleep so ice packs, ice bath , ice towels would probably have to do for now.

Does these sound familiar to you?

The tests for Hypohidrosis involving electro zapping ( or see if you pores can produce sweat) and pick your skin off for skin biopsy ( they'll cut you) . So if waiting for this test is making you sweat then good news! You might not have Hypohidrosis
Thanks Tipnatee for mentioning your experience with sweating. My experience is so different. But I've made a point to tell my doctor about my sweating and they do the " in one ear and out the other thing " They don't even ask: "Hmmm, can you tell me more about that....?" Nope. They just allow me to say it but they do nothing about finding out more, asking questions, digging for details so it is a non-issue for the most part.

So now that you mentioned it I will ramble a little about it here now and see if anyone else can relate. In fact I have wondered if this notion that Fibro is mostly a Female disease if there exists a difference between the way that men are effected and the way that women are effected?

So for me I noticed going back a long time now that the smallest of actions results in a soaking. I have changed my T-shirts 5 to 8 times while I am working. The smallest activity leads to a drenching. I also noticed that my smell has changed which I've attempted to stress to the doctors. They ignore the feedback. There have been a few times that I am so soaked that it is near impossible to pull my t-shirt overe my head so there is a pattern of rip marks where my thumb goes through the shirt. I have also had a chance to ring it out and collect an amount of sweat that equals about a 1/4 or a cup of sweat/

I do other tests with the sweat mostly because it is so abnormally much. I noticed how salty it is so when it dries on a tshirt it leaves a white ring along the edge where it dries. I also noticed if it gets into my eye's it burns like ACID. I've been looking into ways to record the PH.
I've been keeping a journal on the number of time I urinate to see if there is a connection of some significant amount to report to the doctors, I'm also keeping a journal about my liquid intake.

I would think that the doctors would WANT this data. One doctor said: "OH WOW!" when I showed him pictures that I took over a 24 hour period of time. But,
:OH WOW " lead to oh nothing.

Wouldn't it be helpful and interesting if a doctor or more dropped in here to read what HB's wrote about and then they wrote back and commented on what they may want to know more about.

I sure would like to see that happen so all of my data could be reviewed and the number crunched. Since I am not a doctor or a scientist everything I do is an experiment and a data collection.

My thoughts are that this is a great collection of information to let it go by without asking more about MY EXPERIENCES AND DATA COLLECTION>

Let's see if anyone reads this and asks.

Thanks Tip for starting this thread!

Wait til you hear about the dreams!
VanGogh is offline   Reply With QuoteReply With Quote
The Following User Says Thank You to VanGogh For This Useful Post:
Tipnatee N (06-24-2017)
Old 06-25-2017, 04:44 PM #7 (permalink)
1sweed's Avatar
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,874
1sweed will become famous soon enough
1sweed 1sweed is offline
Very Helpful Member
Registered Member
1sweed's Avatar
Join Date: 2013
City: *****
State: Pennsylvania
Country: US
Diagnosed: 01/1995
Interest: I am being diagnosed with Fibromyalgia and/or chronic pain.
Posts: 1,874
1sweed will become famous soon enough
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

I am actually one of those who does not sweat much unless of course it is 90 degree weather in August. Even then I do not sweat like most people but I do get dehydrated very easily and carry water with me where ever I go. I would much rather be cool then overly hot, but again with fibro it seems our bodies need to be warm to ward off those terrible muscle cramps. I really don't think there is much that can be done about it other then watching out that we do not put ourselves in a place or temp's that could cause personal harm.
__________________
Let not your heart be troubled, much better days lie ahead for all of us.
1sweed is offline   Reply With QuoteReply With Quote
The Following User Says Thank You to 1sweed For This Useful Post:
Tipnatee N (06-26-2017)
Old 06-27-2017, 06:40 PM #8 (permalink)
dawn610's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 2
dawn610 is on a distinguished road
dawn610 dawn610 is offline
New Member (Say Hi)
Registered Member
dawn610's Avatar
Join Date: 2017
City: lake worth
State: fl
Country: usa
Diagnosed: 12/1988
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 2
dawn610 is on a distinguished road
Default Re: Hypohidrosis ( absent sweating) in fibromyalgia

I too have had same issue for the majority of my life. It was not until one of my doctors, rhuematoid dr figured out that I also had raynaud's (constantly cold-chilled to the bones) and put me on a medicine to make my blood pressure higher since it was chronically low that I actually started to sweat! I still get cold and don't sweat like a normal person when I am inside but I live in Florida so I actually started to sweat this year and could not believe it! That is the only symptom I have had relief from though unfortunately.
dawn610 is offline   Reply With QuoteReply With Quote
The Following User Says Thank You to dawn610 For This Useful Post:
Tipnatee N (06-28-2017)
Reply

Tags
anxiety, back, burning, fever, fibromyalgia, good, hair, heat, how to, hypohidrosis, ice, medication, migraine, neck, night, problem, shower, sleep, sounds, stroke, symptom, temperature


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads
Thread Thread Starter Forum Replies Last Post
Reduced sweating (hypohidrosis) JackieG General Discussions About Fibromyalgia 4 06-23-2016 09:54 PM
Facial sweating in waves. I'm about to lose my mind. ErinLC General Discussions About Fibromyalgia 2 06-14-2015 02:31 PM
Sweating Alison Welcome New Members - Say Hello 0 01-16-2014 01:39 AM

 
All times are GMT -5. The time now is 05:41 PM.
Copyright © 2017