Old 08-05-2009, 06:42 PM #1 (permalink)
JUDIEMATUL
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JUDIEMATUL
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Default Anyone on steroids?

I was diagnosed in May 2009 with ALS that started with drop foot a year and a half ago which we thought was originally related to radiation I received due to a diagnosis of bone cancer in my spine 7 years earlier. I have been on a steroid intermittently over the years for fibromyalgia inflamation, even since my ALS diagnosis. I started titrating down last week and noticed that my voice weakened considerably and experienced greater fatigue when I went from 10mg to 5mg. My neurologist says that the steroid should not impact my ALS, but I am noticing that I am weaker without it. Has anyone had a similar experience or have any insight?
 
Old 08-05-2009, 09:59 PM #2 (permalink)
tdamess
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tdamess
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this i would like to know also
 
Old 08-16-2009, 02:55 PM #3 (permalink)
Tich1
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Tich1
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At my last visit to my neurologist he did say that he uses steroids at times for his patients . I have had steroids before lots of times for asthma and they certainly help that . If he puts me on them I'll let you know
 
Old 08-16-2009, 07:26 PM #4 (permalink)
Erica
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Erica
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Steroids are known to increase energy, but also known to cause muscle atrophy if used in large doses or for a prolonged amount of time. I think it's good that you went of your steroid; I hope you were told to slowly taper off the steroid.Cookie
 
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als, diagnosis, fatigue, fibromyalgia, neurologist


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