Old 11-25-2015, 07:41 PM #1 (permalink)
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Feeling very hurt. Not sure what hurts most? This disease, or all my family and friends, husband who disreguard me now and treat me like the plague
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Old 11-25-2015, 11:32 PM #2 (permalink)
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City: Gothenburg
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Hi, my name is Andrea and I am glad you found the Group. I read more than I post. I am North American but have lived the last 12 years in Sweden. I am 52 and figro came on slowly over the lasr three years. I am now more or less homebound and can understand the discouraging feelings. In the spring my symptoms were raging. I took a trip to see my mom staetside and had to except I needed help from the airline to get there. My mother seemed angry I was ill and couldnīt stay up late or always was napping. I think it scared her and her reaction was mixed. I had no diagnosis until October and even then she was not so empathetic. In time, slowly, she has come around by reading family support groups on facebook and taking the time to educate herself. I hope your family comes around. We arenīt contagious however love and support are a constant. I advise seeking counseling from a pain specialist if you have not already done so. To get stronger you need your own will as well. I feel sad for each and everyone of us who are facing this bizarre lifelong journey. I started reading and following some "Mindfulness practices". They are selling coloring books for stress and anxiety. There is even an adult coloring book group on facebook. These types of activities can help some relieve or reduce their feelings of inactivity. I am sorry your family isnīt standing with you, bit in time they may change when they learn more about your condition. cyber hug, andee
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Old 11-26-2015, 06:28 AM #3 (permalink)
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Default Re: discouraged

They will never truly get our suffering.....my family have hurt me almost as much as the pain too. My parents simply dont believe i have anything wrong and that no pain can be that bad and say things like if i get up and walk or do more it would get better! I am gritting my teeth in pain day and night for the last few months its that bad...or curled up with hot water bottles fighting every minute.

I dont get flares anymore...it one long total body wide flare that never stops.

My heart goes out to you. We don't want sympathy just love and kindness.
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Old 11-26-2015, 11:19 PM #4 (permalink)
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I feel for you. THE SOONER YOU ADJUST TO THE REJECTION/NIEVE. THE BETTER OFF YOU WILL BE. DON'T BRING UP FIBRO TO THOSE WHO DONT CARE TO UNDERSTAND. It's a waste of energy, and you need reserves.
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