- Joined
- Dec 2, 2016
- Messages
- 3,215
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- US
Apparently this is where I post first, to say hello. Sorry for the long post. I was diagnosed with fibromyalgia a few weeks ago, but have no doubt that I have had it for years, as I have had chronic pain and other symptoms for a long time. The GP was finally willing to send me to some specialists, and I got the diagnosis. I also have degenerative disc disease in my lower back, and severe carpal tunnel syndrome in both wrists.
I have always been an extremely active, energetic, and fit person. The work I do for my living is very physically and mentally demanding, and I now am only able to work two or three days a week at most, and often I pay for it dearly, resulting in a cycle of work one day-recover for three days. This means I often don't get things done at home, which is discouraging, because I have always stayed on top of everything. My house exterior desperately needed to be painted, for example, so I am doing it, but it is taking me weeks to get it done a little bit at a time. Previously I would have had it done in a few days.
Unlike many of you, I do not have anyone else: no significant other or family, and I lost both of my good friends in the past three years. I live far from town. There is no one to help me do anything, so if I don't take care of my home and several animals, it won't get done. I am exhausted all the time and it is making me feel very sad and alone. Generally I have not minded being alone, as I am happy with my own company and my animals, but the physical challenges are getting to me.
I now see a doctor at a pain clinic, and at least he is willing to prescribe tramadol for me, which makes it possible for me to get through the day. But he also makes me try other medications. So far the others all make me feel sick, and I have a hard time not resenting the fact that I am forced to take them as if I were a test subject. I get drug tested regularly there, which I resent as well, as I am not a drug abuser.
I hate the fact that I must appear to others as if I have become flaky. I say I am going to do something and when the time comes I am having a bad day and just the thought of driving in to town is too much. I used to hike all the time, many miles up and down mountains; it was my life's joy and most favorite thing to do. I loved it so much. Now I mostly only do what I have to do. It is hard not to be depressed. The diagnosis really doesn't help, since it doesn't have a cure or even an effective treatment, and apparently will not get better.
I have always been an extremely active, energetic, and fit person. The work I do for my living is very physically and mentally demanding, and I now am only able to work two or three days a week at most, and often I pay for it dearly, resulting in a cycle of work one day-recover for three days. This means I often don't get things done at home, which is discouraging, because I have always stayed on top of everything. My house exterior desperately needed to be painted, for example, so I am doing it, but it is taking me weeks to get it done a little bit at a time. Previously I would have had it done in a few days.
Unlike many of you, I do not have anyone else: no significant other or family, and I lost both of my good friends in the past three years. I live far from town. There is no one to help me do anything, so if I don't take care of my home and several animals, it won't get done. I am exhausted all the time and it is making me feel very sad and alone. Generally I have not minded being alone, as I am happy with my own company and my animals, but the physical challenges are getting to me.
I now see a doctor at a pain clinic, and at least he is willing to prescribe tramadol for me, which makes it possible for me to get through the day. But he also makes me try other medications. So far the others all make me feel sick, and I have a hard time not resenting the fact that I am forced to take them as if I were a test subject. I get drug tested regularly there, which I resent as well, as I am not a drug abuser.
I hate the fact that I must appear to others as if I have become flaky. I say I am going to do something and when the time comes I am having a bad day and just the thought of driving in to town is too much. I used to hike all the time, many miles up and down mountains; it was my life's joy and most favorite thing to do. I loved it so much. Now I mostly only do what I have to do. It is hard not to be depressed. The diagnosis really doesn't help, since it doesn't have a cure or even an effective treatment, and apparently will not get better.