Old 02-15-2017, 03:31 PM #1 (permalink)
glm777's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2016
Posts: 4
glm777 is on a distinguished road
glm777 glm777 is offline
New Member (Say Hi)
Registered Member
glm777's Avatar
Join Date: 2016
City: fall river
State: MA
Country: US
Diagnosed: 10/2015
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 4
glm777 is on a distinguished road
Default fibro flare up??

So now that I have been diagnosed, I am having trouble distinguishing what is fibro related and what is not. For instance, for the past 2 days I have been exhausted, having pain in my neck going down my right arm (feels like a violin string being plucked), both my shoulders and my elbows hurt and I have low right sided pelvic discomfort (like I was ovulating but I have had a total hysterectomy). I also have IBS which may be the cause of the pelvic pain but what about everything else? How do you know when to see the doctor or to just ride it out?
glm777 is offline  
Old 02-17-2017, 02:57 AM #2 (permalink)
Senior Member
Registered Member
 
Join Date: 2015
Posts: 579
DK_engineer is on a distinguished road
DK_engineer DK_engineer is offline
Senior Member
Registered Member
Join Date: 2015
City: Newberg
State: OR
Country: US
Diagnosed: 05/2015
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 579
DK_engineer is on a distinguished road
Default Re: fibro flare up??

That is a very good question!

Fibro causes so many downright weird sensations. Fibromyalgia can exaggerate a relatively mild condition, or it can cover over the symptoms of more serious conditions. Having fibromyalgia is like living in a building where the fire alarm is always going off. How do you know when it is a real fire?

I have kept a journal of my symptoms. When I get new symptoms, I send my doctor an e-mail to see what she thinks. In fact, I just did that today because my left arm went partially numb and partially pins and needles for a while. It's probably because I loosened and tightened a whole bunch of little screws yesterday, but I'll see what she says.

It took a few conversations to get to this point with my doctor. Once she realized I was not expecting her to have a treatment for everything I asked about, she became much more at ease with my questions. I also sometimes ask her for feedback - whether she thinks I should let more things go or not. She was a little startled the first time I asked her that, so I explained I wouldn't take it personally if she said yes, I was just trying to get calibrated, so to speak.

Hope this helps - this is not an easy question to answer.
DK_engineer is offline  
Old 02-17-2017, 03:30 PM #3 (permalink)
Forgetmenot's Avatar
Very Helpful Member
Registered Member
 
Join Date: 2014
Posts: 1,371
Forgetmenot is on a distinguished road
Forgetmenot Forgetmenot is offline
Very Helpful Member
Registered Member
Forgetmenot's Avatar
Join Date: 2014
City: London
State: Hertfordshire
Country: UK
Diagnosed: 70/2010
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,371
Forgetmenot is on a distinguished road
Default Re: fibro flare up??

Hay welcome.DK is so right.its very hard to know what's what.the thing is when your new to this.you don't know
You will learn as time goes on what is normal for you,and what's not.fibro pain tends to keep nagging for weeks at a time if not longer.reading what you can,and sites like this,will help you to learn what's what.
Of course you can pass everything off as fibro.and being new to it I'm sure your dr will understand the odd phone call or visit.the only truly stupid questions are the ones we never ask x
Forgetmenot is offline  
Old 02-17-2017, 04:24 PM #4 (permalink)
fibrogirl1's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 4
fibrogirl1 is on a distinguished road
fibrogirl1 fibrogirl1 is offline
New Member (Say Hi)
Registered Member
fibrogirl1's Avatar
Join Date: 2017
City: Dallas
State: Texas
Country: US
Diagnosed: 05/2006
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 4
fibrogirl1 is on a distinguished road
Default Re: fibro flare up??

I think when I had a really bad, multi-year flare up, I actually erred on the side of not attributing enough to the fibro. I found myself at all kinds of specialists sure there was something deathly wrong with me, and I have learned that there are all kinds of systemic symptoms that our doctors don't know or don't tell us about. It's hard though, because I don't want to let something go and it really is something serious.
fibrogirl1 is offline  
Old 02-18-2017, 12:01 PM #5 (permalink)
karen m's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 2
karen m is on a distinguished road
karen m karen m is offline
New Member (Say Hi)
Registered Member
karen m's Avatar
Join Date: 2017
City: Cambridge
State: Ontario
Country: CA
Diagnosed: 03/1987
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 2
karen m is on a distinguished road
Default Re: fibro flare up??

well hun u can ride it out or u can go to ur dr. and see what they can give u for the pain. right now i am on lyrica and cymbolta and nothing is touching my pain and i have all 18 spots.so it is very hard for me to go with no pain.what i do is keep going and smile if u can because if u don't keep going u will sieze up.
karen m is offline  
Old 02-18-2017, 01:09 PM #6 (permalink)
Forgetmenot's Avatar
Very Helpful Member
Registered Member
 
Join Date: 2014
Posts: 1,371
Forgetmenot is on a distinguished road
Forgetmenot Forgetmenot is offline
Very Helpful Member
Registered Member
Forgetmenot's Avatar
Join Date: 2014
City: London
State: Hertfordshire
Country: UK
Diagnosed: 70/2010
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,371
Forgetmenot is on a distinguished road
Default Re: fibro flare up??

Karen,that's a hard one.some of us like me find stopping make us really stiff.but some folk find keeping going make it worse.
It's hard, I've spent years thinking that stopping,was the worse thing u can ever do.and for me it is.
But,some poor souls stopping is the only thing that helps.we buggered whatever why u look at it.me and you can't sit and relax or we go stiff.and others dare not move .its a horrid illness,
Forgetmenot is offline  
Old 02-20-2017, 08:24 PM #7 (permalink)
1sweed's Avatar
Very Helpful Member
Registered Member
 
Join Date: 2013
Posts: 1,868
1sweed will become famous soon enough
1sweed 1sweed is offline
Very Helpful Member
Registered Member
1sweed's Avatar
Join Date: 2013
City: *****
State: Pennsylvania
Country: US
Diagnosed: 01/1995
Interest: I am being diagnosed with Fibromyalgia and/or chronic pain.
Posts: 1,868
1sweed will become famous soon enough
Default Re: fibro flare up??

gim777, Fibro can cause lots of different symptoms that as said above can mimic more serious conditions that can scare you into going to the doctor. Recently I had some emotional stress that started a severe headache with eye pain (migraine) and pain in the left side of my chest (Costochondritis), and leg pain (tight muscles). all symptoms of fibromyalgia. However, all these symptoms could have been from a stroke. I went to my doctor's office and he sent me straight to the E.R. for testing. Lucky for me it was not a stroke.

It is always better to check with your doctor when things happen suddenly and the symptoms don't go away. But as said before most things are a combination of anxiety and stress, depression, and fibromyalgia's wild imagination.

Glad your here. Keep posting and I look forward to helping you with answers and encouragement.
__________________
Let not your heart be troubled, much better days lie ahead for all of us.
1sweed is offline  
The Following User Says Thank You to 1sweed For This Useful Post:
glm777 (02-23-2017)
Old 02-23-2017, 02:40 PM #8 (permalink)
glm777's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2016
Posts: 4
glm777 is on a distinguished road
glm777 glm777 is offline
New Member (Say Hi)
Registered Member
glm777's Avatar
Join Date: 2016
City: fall river
State: MA
Country: US
Diagnosed: 10/2015
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 4
glm777 is on a distinguished road
Unhappy Re: fibro flare up??

So my abdominal pain has not gone away. It moves side to side and goes from no pain at times to severe pain. Walking seems to make it worse, sitting makes it go away. No blood in my urine so they are ruling out bladder and kidney issues. I did find out that I have diverticulosis (noted on a colonoscopy from 5 years ago) so now they are thinking diverticulitis. I don't know what to think. No meds touch the pain, no difference no matter what I eat. And I now have become so sensitized to any little pain that I've gotten myself all worked up that this is something horrible. I am also exhausted all the time, get winded very easily and am feeling a little depressed I have to admit. But that all could be related to my non-stop worrying about this stomach issue. I have zero motivation to do anything and getting through a full work day is a challenge. This is all so new for me. I am usually a get up and get going kind of gal. I only took down my Christmas tree YESTERDAY!! It took me 3 hours!
I am having an abdominal/pelvic CT scan this week so we shall see if it shows anything. I never thought I would wish for diverticulitis but it would at least be a reason for this pain.
Sorry to unload - just feeling a bit overwhelmed right now, mentally and physically.
glm777 is offline  
Old 02-28-2017, 12:41 PM #9 (permalink)
Very Helpful Member
Registered Member
 
Join Date: 2015
Posts: 1,221
diamond has a spectacular aura aboutdiamond has a spectacular aura about
diamond diamond is offline
Very Helpful Member
Registered Member
Join Date: 2015
City: somewhere
State: anywhere
Country: UK
Diagnosed: 01/2008
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 1,221
diamond has a spectacular aura aboutdiamond has a spectacular aura about
Default Re: fibro flare up??

Good luck with the scan. Is it a different pain than fibromyalgia pain?

My fibromyalgia pain is pretty intolerable so it may be fibromyalgia related but its good you are getting it investigated as the quicker you know, hopefully, there will be some treatment. I think diverticulosis is infected pockets in the bowel and intestines. My Auntie had it and i think it can be treated with antibiotics to get rid of the infections and any pain down there.

Let us know how you get on. Try not to worry. gentle hugs
diamond is offline  
The Following User Says Thank You to diamond For This Useful Post:
Birgitb (02-28-2017)
Old 03-01-2017, 02:01 PM #10 (permalink)
cindypsych's Avatar
New Member (Say Hi)
Registered Member
 
Join Date: 2017
Posts: 3
cindypsych is on a distinguished road
cindypsych cindypsych is offline
New Member (Say Hi)
Registered Member
cindypsych's Avatar
Join Date: 2017
City: Huntington Station
State: NY
Country: US
Diagnosed: 12/2016
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 3
cindypsych is on a distinguished road
Default Re: fibro flare up??

Quote:
Originally Posted by DK_engineer View Post
That is a very good question!

Fibro causes so many downright weird sensations. Fibromyalgia can exaggerate a relatively mild condition, or it can cover over the symptoms of more serious conditions. Having fibromyalgia is like living in a building where the fire alarm is always going off. How do you know when it is a real fire?

I have kept a journal of my symptoms. When I get new symptoms, I send my doctor an e-mail to see what she thinks. In fact, I just did that today because my left arm went partially numb and partially pins and needles for a while. It's probably because I loosened and tightened a whole bunch of little screws yesterday, but I'll see what she says.

It took a few conversations to get to this point with my doctor. Once she realized I was not expecting her to have a treatment for everything I asked about, she became much more at ease with my questions. I also sometimes ask her for feedback - whether she thinks I should let more things go or not. She was a little startled the first time I asked her that, so I explained I wouldn't take it personally if she said yes, I was just trying to get calibrated, so to speak.

Hope this helps - this is not an easy question to answer.
Sounds like you have a great doctor!
cindypsych is offline  
Closed Thread

Tags
arm, doctor, exhausted, flare, ibs, neck, pain


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads
Thread Thread Starter Forum Replies Last Post
Fibro Flare guinevere1 Chronic Pain 4 10-06-2015 05:58 AM
Fibro Flare guinevere1 General Discussions About Fibromyalgia 6 08-21-2015 09:47 PM
fibro and depression flare after orgazm PLEASE Help pravda Welcome New Members - Say Hello 1 05-11-2015 12:29 AM
fibro flare up magikpoet General Discussions About Fibromyalgia 7 10-27-2014 03:52 AM
Migraines with Fibro Flare? peetred General Discussions About Fibromyalgia 14 08-20-2014 05:37 PM

 
All times are GMT -5. The time now is 02:08 PM.
Copyright © 2017