Old 02-15-2017, 04:31 PM #1 (permalink)
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Default fibro flare up??

So now that I have been diagnosed, I am having trouble distinguishing what is fibro related and what is not. For instance, for the past 2 days I have been exhausted, having pain in my neck going down my right arm (feels like a violin string being plucked), both my shoulders and my elbows hurt and I have low right sided pelvic discomfort (like I was ovulating but I have had a total hysterectomy). I also have IBS which may be the cause of the pelvic pain but what about everything else? How do you know when to see the doctor or to just ride it out?
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Old 02-17-2017, 03:57 AM #2 (permalink)
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Default Re: fibro flare up??

That is a very good question!

Fibro causes so many downright weird sensations. Fibromyalgia can exaggerate a relatively mild condition, or it can cover over the symptoms of more serious conditions. Having fibromyalgia is like living in a building where the fire alarm is always going off. How do you know when it is a real fire?

I have kept a journal of my symptoms. When I get new symptoms, I send my doctor an e-mail to see what she thinks. In fact, I just did that today because my left arm went partially numb and partially pins and needles for a while. It's probably because I loosened and tightened a whole bunch of little screws yesterday, but I'll see what she says.

It took a few conversations to get to this point with my doctor. Once she realized I was not expecting her to have a treatment for everything I asked about, she became much more at ease with my questions. I also sometimes ask her for feedback - whether she thinks I should let more things go or not. She was a little startled the first time I asked her that, so I explained I wouldn't take it personally if she said yes, I was just trying to get calibrated, so to speak.

Hope this helps - this is not an easy question to answer.
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Old 02-17-2017, 04:30 PM #3 (permalink)
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Default Re: fibro flare up??

Hay welcome.DK is so right.its very hard to know what's what.the thing is when your new to this.you don't know
You will learn as time goes on what is normal for you,and what's not.fibro pain tends to keep nagging for weeks at a time if not longer.reading what you can,and sites like this,will help you to learn what's what.
Of course you can pass everything off as fibro.and being new to it I'm sure your dr will understand the odd phone call or visit.the only truly stupid questions are the ones we never ask x
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Old 02-17-2017, 05:24 PM #4 (permalink)
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Default Re: fibro flare up??

I think when I had a really bad, multi-year flare up, I actually erred on the side of not attributing enough to the fibro. I found myself at all kinds of specialists sure there was something deathly wrong with me, and I have learned that there are all kinds of systemic symptoms that our doctors don't know or don't tell us about. It's hard though, because I don't want to let something go and it really is something serious.
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Old 02-18-2017, 01:01 PM #5 (permalink)
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Default Re: fibro flare up??

well hun u can ride it out or u can go to ur dr. and see what they can give u for the pain. right now i am on lyrica and cymbolta and nothing is touching my pain and i have all 18 spots.so it is very hard for me to go with no pain.what i do is keep going and smile if u can because if u don't keep going u will sieze up.
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Old 02-18-2017, 02:09 PM #6 (permalink)
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Default Re: fibro flare up??

Karen,that's a hard one.some of us like me find stopping make us really stiff.but some folk find keeping going make it worse.
It's hard, I've spent years thinking that stopping,was the worse thing u can ever do.and for me it is.
But,some poor souls stopping is the only thing that helps.we buggered whatever why u look at it.me and you can't sit and relax or we go stiff.and others dare not move .its a horrid illness,
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