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New member
Joined
May 29, 2014
Messages
2
Reason
DX FIBRO
Diagnosis
01/1997
Country
US
State
North Carolina
I am here for the first time after being urged by my daughter for a long time. I have been suffering for a long time, and have finally decided this is probably what I have. I also have severe back pain, so it all runs together. The last 2 years have been debilitating. I am very alone feeling in my illness. Can't sleep, everything hurts, can't get in & out of bed, get dressed, walk far without so much pain. I need someone to talk to that understands.
 
Welcome Chris! Sorry you're here, but very glad you found us! Just curious, have you been officially diagnosed yet? If not, you may want to see a rheumatologist, as they are typically the only type of specialist that can truly diagnose fibro... They will be able to run all sorts of tests for you to make sure nothing else is wrong (like an auto-immune disease) and get you started with treatments.
Please have a look through old and new posts, as there is a wealth of information here! A lot of our members are extremely helpful and knowledgeable! And this is a great place to vent! Everyone is extremely caring and understanding, and it's a judgment free zone! You'll love it here! Don't be shy! And please join in on anything you see that peeks your interest!
Again, welcome! :)
-Katie :)
 
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Thank-you Katie for writing. Yes, I have been diagnosed many times with this, but I guess I thought they were wrong. Seems that when they can't find anything else, that is what they say you have. I am in so much pain, and I haven't heard anyone with fibro complain as loudly about pain as I am. But, with joining this forum, I may find out I am wrong. I also have degenerative disc disease, I also have bursitis in my hips, that hurts so bad I cry. Can't lay on the hip in bed. My bed hurts! And, I have made it as soft as I can!
I have had every blood test there is, then they happily look at me & say "all your labs are normal!" And send me on my way. Like I am supposed to be glad. I look at them like, "but, I am in so much pain!
I feel like these doctors don't believe me. There are so many people that abuse pain pills that doctors won't prescribe anymore. I am allergic to so many drugs, the only thing that I can take is Demerol, which is not a strong, but now they won't give me anymore. I have never been a person who would want pills for the HIGH! And, I was only given 1 a day! So, I am glad I did this, I live with my daughter now, because 2 yrs ago I started hurting all over, and couldn't work anymore, and my poor daughter doesn't know what to tell me anymore or how to help me. I have been on Lyrica numerous times before, and has done nothing for the pain. What else is there? I am so tired from lack of good sleep, and so tired od 24/7 pain. I am never out of pain. Thanks for listening. Tell me what else I can do.
 
Well, there's not much your daughter can do or say to make it better, all she can do is be understanding and be there if you do need help or to vent..
I know how she feels- helpless, because I felt that way about my mom for the last 17 years.. She has crps (aka rsd) and It killed me watching her in pain and frustration... Now for the last 2.5-4 years, I've been in pain too, so we are I the same boat and are there for each other.. Now I understand when she said "there's nothing you can do" because she asks me what she can do now, and I reply "nothing...", but just being there for each other helps so much...
And trust me, there are many folks on here who have Excruciating pain levels as well, myself included, as I have more than just fibro going on as well...
Have you been to a pain management Dr? If not, I recommend finding one!... Mine has been an angel, meds won't cure you tho, if you find the right ones though they will make every day pains more tolerable...
And I definitely recommend lookin through old and new posts because there is a lot of really good tips and tricks of managing your pain and other topics, who knows you might find something you haven't tried yet and it might help!
Unfortunately, everything is trial and error with fibro because no 2 patients have the same symptoms or pain...
 
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