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Vellybean

Active member
Joined
Jan 23, 2015
Messages
48
Reason
DX FIBRO
Diagnosis
09/1993
Country
US
State
WI
This is one of the worst FMS stretch of days I have had in a while. I was diagnosed when I was 30 which is very young. I have been struggling to keep on keeping on since then. I use to teach elementary school full time but had to quit because of the symptoms I have. I tried teaching part time but even that proved to be a bit much on some days as I never knew if I was going to be able to sleep at night or be in pain so bad that it was hard to have patience. I decided it was best for everyone if I take a medical leave at age 36. I was diagnosed and felt hopeful as my doctor was doing a study on FMS. Unfortunately, it didn't work. It included taking L-Dopa and 5HTP. I became severely depressed and tried to take my life. I lost my husband and boys because he did not understand at all. I mean I looked great and it looked like nothing was wrong with me and the doctors did a poor job explaining this to him as they knew very little about it themselves. I then met, Dr. Nancy Selfridge, who wrote a book about her struggle with FMS. She became my primary doctor but nothing helped. I was with her for about five years until she moved. Now, my doctor believes I have pain and has even sent me to a pain specialist but that was a horrible experience. I felt like a guinea pig as they really had no clue what they were doing either. I am remarried for 12 years to a great man who, I have to say, is so understanding and never gives me a hard time when I have bad days due to FMS. I have been fostering kittens now because I wanted to do something that was theraputic and brought joy to my life. I realize my attitude makes a big difference and I try to get up and out every day but this past week has been impossible. I did go to the chiropractor though. Yes, this helps with my headaches and upper neck pain. I go to talk therapy to help myself also and take antidepressants. I wish there was a magic cure for this disease! I am sure many of you can relate. I am here to chat and share. It is hard to find people who actually understand.
 
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