Nexi
Active member
- Joined
- Dec 1, 2015
- Messages
- 90
- Reason
- DX FIBRO
- Diagnosis
- 03/2002
- Country
- CA
- State
- Northwest Territories
I have been through hell and back with the debilitating pain of fibro and the fatigue. I couldn't work, get out of bed to take care of my kids, going to the bathroom took all my effort. I ended up on T3's, and a crazy dose of gabapentin, morphine and tramadol. I ended up staying on this for years, but one day I forgot to take my a.m. meds that I would take an hour before I got out of bed otherwise I couldn't. I noticed that I had pain but not as intense. So I ended up just not taking my morning dosage for the next couple of weeks. I was feeling pretty good and so I decided to go talk to my doctor and we worked on slowly reducing my medications over the next 6 months. I ended up within 7 months only needing ibuprofen to manage but it did take me a lot longer to build up my stamina. In that time I did learn very quickly just how much I could push myself. Within the last 8 months I have been in complete denial. It is back and it is getting really bad very quickly. I have been working full time for the last 8 years and I have been pushing myself to my limits...working 70+ hours a week. I have felt so good though and then I got sick and ever since then I can hardly work 40 hours a week. I have been calling in sick which is horrible. I feel guilty, frustrated and angry for letting people down. My husband is amazing and he doesn't care if I have to stop working. I am now living in the Arctic circle, and getting to see a good, qualified doctor with a working knowledge of Fibromyalgia is impossible. Long story short...I just don't know what I should do. Flying out from this remote village is very costly but I would if I could find a doctor that would work with me. So disheartening.