Old 06-20-2018, 11:28 PM #1 (permalink)
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Hello all,
I have fibromyalgia and all the other wonderful gifts (lol) that come with it - anxiety, depression, insomnia, lack of focus, loss of cognitive function, canít handle any sort of stress or pressure. Itís really putting a strain on my marriage and affecting my 7 year old daughter. Sometimes I think they both would be better off if I just left. Anyway thatís enough of an intro for now.....
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Old 06-22-2018, 10:20 AM #2 (permalink)
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Default Re: New to forum and saying Hello

Hi to all!!! I have FM since 2016. I am currently doing hypnotherapy, relaxation and meditation exercises and I went vegan last year to cope with my Fibro and depression. I definitely feel better when I follow them, but sometimes I get tempted to eat bad food and I notice the FM gets worse especially when I eat fast food, sodas and unhealthy pastries. So far, I could see my FM hopefully going in remission when I do the other way. I still have tingling and aches and pains but I can do my everyday tasks well the way I normally would without feeling fatigue quickly as long as I take the solution seriously. I have not tried any medication for a long time after the first 2 months of gabapentin I was not doing well so I switched to a holistic approach. Hope you all continue being encouraged to love your lives and to keep fighting!!!
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Old 06-24-2018, 01:22 PM #3 (permalink)
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Hi!

I have just joined and wanted to say hi. I am in England and I'm currently being seen by a specialist. I've had x-rays and ultra sound scans, blood tests and a physical exam. It was originally thought I had rheumatoid arthritis as I have an autoimmune system that was compromised by a virus I picked up after being bitten over 30 times in one day by mosquitoes in southern Greece. I was ill for 3 months following that trip in 2015 with aching joints and muscles, flu-like symptoms and extreme fatigue. Since then I have never really been the same. I would be fine for a few weeks and then I'd wake up with the same symptoms.

After partially rupturing my Achilles tendon by doing nothing more than standing up and walking the doctors decided my aching joints and sometimes, inflamed tendons needed investigation. This also coincided with extreme fatigue to the point where I would fall asleep holding a cup of coffee! Blood tests immediately revealed hypothyroidism and I have spent the last 5 months with regular blood tests and tweaking of the drug Levothyroxine to try and stabilise my condition.

As I already had arthritis in my spine after a back injury that needed 2 operations and an artificial disc replacement 15 years earlier, rheumatoid arthritis was suspected in addition (another auto immune condition). However, it has become apparent that my symptoms are more closely associated with fibromyalgia. It is still to be confirmed but the specialist did indicate that it was either RA or fibromyalgia and results of x-rays and scans haven't shown anything more sinister than normal wear and tear at 51 years of age.....

Hopefully confirmation will be made very soon as I am suffering with aches and pains in many joints. Some are just agony to touch. Very weird. I get days when I feel ok and then days when I feel like I have the flu. I am in a mode of depression that I cannot seem to shake off. These are just a few of the symptoms.

I am intrigued to know if anybody else has suffered problems with their auto immune system and has similar symptoms. I am usually a 'glass half full' kind of person but I am struggling to get my positivity back. Thanks for listening and I hope your own symptoms are manageable.
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Old 07-01-2018, 05:01 AM #4 (permalink)
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Oh honey. What are you on for treatment?

I'm a 25 year old female. I have two daughters, six and seven. My fibromyalgia used to MAJORLY impact my marriage and my children. I used to sleep up to 22 hours a day on a regular basis--16 hours at a bare minimum. I was SO depressed, no matter how happy I was, if you know what I mean. I had constant spasms that, prior to this diagnosis, we a major concern. I was tested for carpal tunnel, cubital tunnel, seizures, tumors, epilepsy, I was taken to a neurologist, I went through phsyical therapy, I was falsely diagnosed with MS... I would reflexively jump away from anything that made contact with my lower back, shoulders, or rib/chest area. I would experience allodynia that I mistook for hot flushes; my face, neck, and sometimes chest would get really hot and it felt like I was being stuck with thousands upon thousands of needles.

My kids, only 3 or 4 at the time, were so used to my pain that they'd warn me before hugging me or holding my hand, and they'd start off with barely any pressure. They knew that if I tapped/rubbed their back they could hug me tighter, or if I squeezed their hand they could squeeze back. If they saw me on the floor or shaking, they would bring me my purse with my meds in it. My children were taught about medicine and the dangers of it at a very, very young age. They know that taking medicine you don't need makes you very sick, in pain, could kill you, etc. The way that it effects our children... It's terrible and sad and I hated myself for being so weak that my children had to see it, and even worse, had to take care of me sometimes, before they could even read. I cannot express how much self loathing I had because of that.

But it won't be like that forever. Once you find a good treatment regiment, it gets better. You become almost normal.

Not to be intrusive, but where are you from?
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Old 07-01-2018, 05:01 AM #5 (permalink)
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Default Re: New to forum and saying Hello

Oh honey. What are you on for treatment?

I'm a 25 year old female. I have two daughters, six and seven. My fibromyalgia used to MAJORLY impact my marriage and my children. I used to sleep up to 22 hours a day on a regular basis--16 hours at a bare minimum. I was SO depressed, no matter how happy I was, if you know what I mean. I had constant spasms that, prior to this diagnosis, we a major concern. I was tested for carpal tunnel, cubital tunnel, seizures, tumors, epilepsy, I was taken to a neurologist, I went through phsyical therapy, I was falsely diagnosed with MS... I would reflexively jump away from anything that made contact with my lower back, shoulders, or rib/chest area. I would experience allodynia that I mistook for hot flushes; my face, neck, and sometimes chest would get really hot and it felt like I was being stuck with thousands upon thousands of needles.

My kids, only 3 or 4 at the time, were so used to my pain that they'd warn me before hugging me or holding my hand, and they'd start off with barely any pressure. They knew that if I tapped/rubbed their back they could hug me tighter, or if I squeezed their hand they could squeeze back. If they saw me on the floor or shaking, they would bring me my purse with my meds in it. My children were taught about medicine and the dangers of it at a very, very young age. They know that taking medicine you don't need makes you very sick, in pain, could kill you, etc. The way that it effects our children... It's terrible and sad and I hated myself for being so weak that my children had to see it, and even worse, had to take care of me sometimes, before they could even read. I cannot express how much self loathing I had because of that.

But it won't be like that forever. Once you find a good treatment regiment, it gets better. You become almost normal.

Not to be intrusive, but where are you from?
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Old 07-01-2018, 05:35 AM #6 (permalink)
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Default Re: New to forum and saying Hello

I am in Central England. I am still waiting for a treatment regime but I have found that Lyrica helps. I read somewhere that it can help some sufferers and I take them for a coccyx injury. Thank you for sharing. It really helps to hear about others experiences. ��
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Old 07-06-2018, 04:38 AM #7 (permalink)
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Default Re: New to forum and saying Hello

Hey guys, i'm new here. Was diagnosed 2 years ago, when I had insomnia caused with the back pain. Later the doctors found Irritable bowel syndrome. And honestly it's awful.
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Old 07-06-2018, 05:14 AM #8 (permalink)
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Hi Regina.....Sorry to hear you are suffering. At least you have people on here who understand what you are feeling.
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Old 07-08-2018, 11:07 AM #9 (permalink)
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Post Re: New to forum and saying Hello

Good day, all! I am a new member. I was diagnosed with Fibromyalgia July 3rd, 2018, but have had symptoms for years. I also suffered a psychotic break due to extreme stress, depression, and anxiety on February 17th, 2018. I was admitted to a mental health crisis center for 8 days. The psychotic break has greatly intensified my Fibromyalgia symptoms.

I have worked in Supply Chain for one of the largest producers of chemicals and related products in North America for 27 years, but I have been on leave since February. My job was very stressful, fast paced, and required a good bit of overtime. I often wonder if I will ever be able to go back to the my job, as I never know what I am going to face when I wake up every day.

I hope to gain knowledge, support, and friendships from this community.
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Old 07-08-2018, 07:16 PM #10 (permalink)
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Hi Venussaturn18! I am new here too. How is the hypnotherapy going for you?
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Old 07-08-2018, 07:23 PM #11 (permalink)
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Default Re: New to forum and saying Hello

Hi AngieW18! I am new here too. I hope you have confirmation soon and your Doctors can get your treatment started. I was just diagnosed on July 3rd and was prescribed Lyrica. So far, it seems to be giving me some relief, but today has been a very bad day.
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Old 07-08-2018, 07:29 PM #12 (permalink)
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Default Re: New to forum and saying Hello

Hi Kellie. I am new here. I was diagnosed July 3rd, 2018. I also have all of the wonderful things that come with Fibromyalgia. I also suffered a Psychotic Break on February 17th, 2018 and was hospitalized for 8 days. What does your treatment consist of?
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Old 07-14-2018, 09:41 PM #13 (permalink)
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Default Re: New to forum and saying Hello

Quote:
Originally Posted by LisaRae View Post
Good day, all! I am a new member. I was diagnosed with Fibromyalgia July 3rd, 2018, but have had symptoms for years. I also suffered a psychotic break due to extreme stress, depression, and anxiety on February 17th, 2018. I was admitted to a mental health crisis center for 8 days. The psychotic break has greatly intensified my Fibromyalgia symptoms.

I have worked in Supply Chain for one of the largest producers of chemicals and related products in North America for 27 years, but I have been on leave since February. My job was very stressful, fast paced, and required a good bit of overtime. I often wonder if I will ever be able to go back to the my job, as I never know what I am going to face when I wake up every day.

I hope to gain knowledge, support, and friendships from this community.
Welcome to the forum LisaRae!

Thank you for sharing with us what you have gone through. Aside from taking Lyrica, have you found any treatment suitable and effective for yourself? Everybody is different, you can try different things and see which works better for you.

Four years ago I had hypnotherapy for about two months, it was good but because it was far away from my place so I stopped and went for acupuncture. I am still going to have acupuncture weekly, I find it very helpful together with healthy diet and supplements from my naturopathic doctor. Some of the supplements are for my anxiety, others serve to strengthen my nervous system, I guess, because they are different kinds of vitamin B and liquid B complex, plus liquid calcium and magnesium for muscle spasm which I have almost everyday.
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Old 07-16-2018, 04:57 AM #14 (permalink)
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Default Re: New to forum and saying Hello

Hi all! I'm new here and haven't been diagnosed officially with fibro yet, but I guess I have very matching symptoms...
I guess this forum help me to collect all the necessary information on this topic
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Old 07-20-2018, 03:16 PM #15 (permalink)
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Default Re: New to forum and saying Hello

Hi Kellie, I am also new here. I have had this for 4 years. I had neck surgery and 3 months after recovery I got extreme widespread pain and fatigue and since then it has been constant. Pain medication does not help me at all. (Thatís good I guess) because of the opiate epidemic they are impossible to get.

I do not have a child to look after. I do have a Husband though, and I know how it can negatively effect a marriage. Hopefully you will find something that will help a little. I know there are a lot of people that say donít take medications (Cymbalta etc...)but I donít care. When you are in this type of pain you should try anything and everything to try to improve your quality of life.

We all want our lifeís back!🙁

I AM SENDING YOU POSITIVE VIBES🌸🍃.
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