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Flower

New member
Joined
May 17, 2015
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2
Reason
DX FIBRO
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00/0000
Country
US
State
MN
Hi everyone.

For the past couple of years I have been in a lot of pain. It started as peripheral neuropathy in my feet and hands. I also have plantar fibromas in my feet. Walking is painful and I can't be on my feet much. I had a stressful job that I eventually quit due to pain. My plan was to take the summer off, get better and then find another job.

As the summer progressed, so did my pain levels and it spread to my legs, hips and upper and lower back. I'm currently seeing a physical therapist for my back pain and have tried acupuncture. My Internist finally diagnosed Fibromyalgia earlier this month.

I applied for disability, but have been turned down twice. With this additional diagnosis, perhaps I'll do better on the next try. I also have an attorney this time.

These past couple of years have been so hard. I feel isolated and depressed much of the time. I cannot be on my feet long, but my back makes it difficult for me to sit and my dumb butt goes numb all of the time! Finding a comfortable position is nearly impossible.

I read something about Guaifenesin being a "cure," but then it appears that theory was flawed. Right now I'm taking Nortriptyline and klonopin, but I can't say they do much for the pain.

My husband has been supportive, but I know he'd like his wife back. I miss my career and contributing to the family income and just being part of things. I can never rsvp for anything because I never know how I'm going to be feeling.

It was nice to find this group just to know I'm not alone. I'm tired of doctors and practitioners poking around at me and shrugging their shoulders. One thing I picked up from reading this forum is that other people have pain that seems to move around. Mine definitely does that. Especially in my back. It can be upper back and then start creeping down and move into my hips. Do many of you have that kind of pain that moves?

Thanks for reading!
 
Hi,

welcome!

I am a new member as well, looking for the support online I don't seem to be able to get in the physical.

Yes, I have found my pain does move around at times.

Have you tried swimming or Tai Chi? Went to fibro workshop last week that said exercise and therapy (CBT) were the most helpful with Fibro, med's were farther down on the list.
 
Hi kathym. My doctor really stressed using a warm water pool. In fact I'm going to a water class today. The place I go does have some gentle yoga type classes as well. I don't know much about CBT, but I would be willing to try anything.

The pain moving around has made it so difficult for me to talk to my doctor because I sound like I'm making it up! It may be upper back one day and then slip down to my lower back. With neuropathy I always fear more nerve damage, so it makes my diagnosis of things more difficult.

I would agree that it is hard to find support as I don't know anyone else with FMS and so many people still feel that it is not real. I would love to go to a workshop. How did you find one?
 
My many years of working with this "stuff" I believe good dosing of magnesium thru the day is critical.

Making sure thyroid is optimal, for over 10 yrs I was given the mantra "your thyroid is fine"...it was NOT. We are not numbers...we have a list
of symptoms... and thyroid can address a lot of those symptoms.

Stretching is critical, I'm forever stretching my body. I'm older 77 this year but dealing with the FM since 63 and OA came on at 18....so a body full of chronic pain. But I manage to control as best I can.

For me, I have chosen not to take the so called FM drugs, ibuprofen is what I use for pain and Pain RX herbal supplement in between and DGL for
stomach protection.

I take a lot of other supps as I know so much has to be addressed...it's work but I don't feel taking a drug is the answer.
 
Thanks for the tip with magnesium!

I have the opposite problem with the thyroid, they want me on med's when I am borderline and its been a tug of war to keep off the med's (I am feeling fine right now).

I am choosing as well to not take FM drugs but get the label "drug resistant".

I am looking for a warm pool in town to get some stretching and exercise and tonight am going to an intro for yoga and CBT therapy the city is putting on for those with FM.:lol:



My many years of working with this "stuff" I believe good dosing of magnesium thru the day is critical.

Making sure thyroid is optimal, for over 10 yrs I was given the mantra "your thyroid is fine"...it was NOT. We are not numbers...we have a list
of symptoms... and thyroid can address a lot of those symptoms.

Stretching is critical, I'm forever stretching my body. I'm older 77 this year but dealing with the FM since 63 and OA came on at 18....so a body full of chronic pain. But I manage to control as best I can.

For me, I have chosen not to take the so called FM drugs, ibuprofen is what I use for pain and Pain RX herbal supplement in between and DGL for
stomach protection.

I take a lot of other supps as I know so much has to be addressed...it's work but I don't feel taking a drug is the answer.
 
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