Hey Roxana Ra,
I’m sorry to hear you’ve been having such a tough time, being in bed a lot lately. It can be very tough trying to exist with a condition like this...
As I’m very new to having FM, I don’t feel at this point that I have a whole lot to add to the helpful comments people have sent through so far, and I certainly have no advice - I hardly know what works for me yet, let alone someone else with this Condition!
But I really wanted to reply to this comment in particular as I saw you said that you get so anxious sometimes about the pains that you feel like you might become paralysed or that your FM will degenerate.
I just wanted to let you know that I’ve also had those same anxieties and fears. The other night my legs hurt so much I spent the evening in tears of agony, terrified that I wouldn’t be able to move my legs again if the pain continued. Thankfully it was only about 5-6 hours and I can still move my legs, I was walking around today with much less difficulty. I’ve often had fears that my FM could turn into something worse, I think that comes from the way my FM appeared in my life so quickly, and turned from just pains in my arms to all over my body in a matter of weeks.
I think it’s only natural that we get scared, of our pains, and of them mutating into something even more scary. This is a weird condition, and one that seems to affect every person differently, so there seem to be lots of unknowns - I know that fuels my anxiety for sure!
I basically just wanted you to know you’re not alone in having these fears. I also had a quick look into it online and it doesn’t look like FM can degenerate. So thankfully we just have to figure out how to cope with this condition only, I think that’s enough for me lol.
Best of luck,
Charlotte x