Muir
New member
- Joined
- Jan 29, 2021
- Messages
- 1
- Reason
- DX FIBRO
- Diagnosis
- 09/2005
- Country
- US
- State
- GA
I was dc with fibromyalgia 18 years ago and it has been a rough road to travel. One of the hardest things I’ve had to deal with is others not understanding what I go through. Not a day passes that I am not in pain. People and especially family don’t see what I’m going through and mostly don’t try to understand.
I had an EMG about 14 years ago and after the test was told by the doctor that he didn’t understand how I dealt with the pain. He said to me that he would not be able to function with my pain levels. Another doctor put me in for SSDI and I didn’t know it until I got a letter and a check 3 months later.
The hardest thing I face is the fact that my family doesn’t see it. I am be hurting so much that I just want curl up and cry, but they can’t see it.
I do volunteer work to keep busy as I am not supposed to work. I hate losing and feel that if I just stay home and do nothing then the fibro wins and I lose.
Social Security has referred me to three agencies that do job retraining at my request but they turned me down after looking at my medical record. None of the medications they have tried works, narcotics keep me awake and do nothing for me. I walk, do other exercises even though I know I may have to pay for it. I’m willing to pay the price rather than do nothing. I have to take heart meds from time to time because if the pain level gets high so does my heart rate and BP.
I’m open to any suggestions that might improve my situation. I am currently thinking of going back to school to get a PHD even though I’m 69 years old. I just don’t want to lose by sitting at home
I had an EMG about 14 years ago and after the test was told by the doctor that he didn’t understand how I dealt with the pain. He said to me that he would not be able to function with my pain levels. Another doctor put me in for SSDI and I didn’t know it until I got a letter and a check 3 months later.
The hardest thing I face is the fact that my family doesn’t see it. I am be hurting so much that I just want curl up and cry, but they can’t see it.
I do volunteer work to keep busy as I am not supposed to work. I hate losing and feel that if I just stay home and do nothing then the fibro wins and I lose.
Social Security has referred me to three agencies that do job retraining at my request but they turned me down after looking at my medical record. None of the medications they have tried works, narcotics keep me awake and do nothing for me. I walk, do other exercises even though I know I may have to pay for it. I’m willing to pay the price rather than do nothing. I have to take heart meds from time to time because if the pain level gets high so does my heart rate and BP.
I’m open to any suggestions that might improve my situation. I am currently thinking of going back to school to get a PHD even though I’m 69 years old. I just don’t want to lose by sitting at home