…after reviewing all previous tests and eliminating many, many things the big picture has led to fibromyalgia.
Hi John, So sorry you’re having to navigate all these waters! It sure would help to have a name for what’s causing you this trouble. At least then you could lay that question to rest and move forward.
You’ve been to a lot of docs and ruled out the obvious things which has landed you in the fibro realm with the rest of us. The crazy thing about fibro is how to manage it can be very unique for each person. Maybe that’s because fibro is a blanket description for similar symptoms that have no known origins…
Since the thing you really want is relief from the pain, I think advice along the lines of keep asking and learning about ways that other people manage symptoms is great advice. Also reading CURRENT studies examining fibromyalgia might shed some light on what you are confronting.
I am still super new on my journey. My symptoms are very different from yours - flu-like fever in my neck, back, shoulders, head etc. I do have severely tender points. What helps my tender points is acupressure/gentle massage and moxa. The challenge for me with massages is they can trigger a flare…What consistently helps is no one touching the tender points
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Another thing: if I push myself too hard I can go into a real bad flare. I really encourage everyone to do whatever they can to minimize that.
Lastly, in my case, any allergens/sensitivities that are happening can lead to a bad flare. I use organic alfalfa from Canada to remedy sensitivities/allergies. Sometimes an allergy/sensitivity problem is based on a food. You can try an elimination diet to see if there’s something there.
That’s a lot of things to think about. I try to try one new thing at a time so I know for sure if something helps. In other words, maybe choose one supplement to try out at a time and give it a chance to work. Once you are confident about how helpful it is move on to another thing. Plan to do an elimination diet at a time when you can commit to it. Don’t try too many things at once.
I think if you keep focus on things that could possibly manage your symptoms you will be well on your way and ahead of “the game”.
You aren’t alone. No matter what the docs say there is something wrong physiologically. Just because they can’t name it doesn’t mean it doesn’t exist.