Recent content by Affinity

My PT is not treating my Fibromyalgia but her treatments are definitely helping it. The dryneedling helps when the muscles are in constant spasm which in turn causes pain and weakness to the area. If your muscles are not spasming then it won't help you. I always associated those muscle pains...

I don't know what the coil is? Do you mean contraception? I haven't been on anything like that is over 20-25 years but I was intolerant of the added hormones and stopped taking them once I thought they were contributing to my issues. I would go off the pill and see if that fixes things before...

Good luck with finding some answers working with your doctor. To me it sounds like anxiety is the big issue for you so while you are waiting I would work on things like meditation and exercise in order to clear the anxiety and see if that helps clear up the pain, too.

Yes I am paying out of pocket and it's more than that but I am desperate at this point! I have to work more to be able to pay for it but if she can get me on the right path so I can manage my symptoms on my own it will be worth it. My visits count toward my deductible but it's a high...

It sounds like you are on the journey of figuring out what works for you, Annie. I do take a time release melatonin to avoid this issue you talk about but it still sometimes happens, but not usually. I agree the anxiety about it is the worst part and so we have to manage that, too! But I...

I'm sorry you are dealing with that. I would call my fibro pain more achy or dull, like how your body hurts all over when you have a fever. Hopefully someone else has similar experience so they can help you.

I have basically all of your symptoms, too, or have dealt with them over time. Sometimes I think we have to choose just one or two things to focus on, because if we try to fix everything at once it's just too much. As for back spasms the PT I am working with insists that they are due to an...

I have been talking to both but it's really up to you. I think a therapist can help develop coping mechanisms and help putting things into perspective. I have been seeing a nutritionist because I developed orthorexia and binge eating disorder as a result of trying to restrict my food too much...

For me it's sleep, exercise, meditate, repeat lol. With the rest of my life mixed in.

Thank you for sharing I hope to watch this!

Welcome! I hope you figure out with your doctor how to best manage your symptoms. Sometimes it feels overwhelming but my approach is to get my sleep in order, improve my exercise, and also deal with other issues as they arise, like right now I am dealing with TMJ and seeing a specialist to get...

I had to google this but it sounds helpful!

I am starting 5HTP right now, too, hoping it will help to boost serotonin levels, from the book The Fibro Fix which I am reading right now. I usually take melatonin at night for sleep. Have you tried that? I prefer to go natural before pharmaceutical!

Hi Annie, I can relate. I am 47 and have a 6 year old and just "showing up" to care for someone else when struggling to care for myself is challenging. The pandemic has also thrown me for a loop this year. I have managed my condition on and off for many years mostly through patience and...

The waiting is the hardest part ...

I sometimes have weird balance issues but nothing like that. I'd be very careful! I haven't taken Lyrica so I can't help there but I would mention it to your dr.

Hope everything is okay, too bad you have to wait!

I get swollen lymph nodes sometimes and it feels more sensitive there

Essential oils isn't just about the smell. I know they are supposed to smell but for example chamomile essential oil is very good for relaxation and it works for me even though I really dislike the smell. Because I know it works well for me I include it is a diluted form in my blends when I...

With all that stress and extra responsibility it is no wonder you are having a flare! Be gentle as you can with yourself and this too shall pass.

Yes but I kind of feel clammy all over as well if that makes sense

Yes me too, when I feel good it's between 60-70 ... today is was 106 ugh

Yes I have TMJ disorder and am being seen by a specialist right now. I was referred to the specialist by my dentist because I was having jaw pain and I thought I had an infection but it turned out that I was clenching and grinding again due to the heightened anxiety this year. I have dealt...

I am not sure how to do that but I try to be careful about being around other people for the same reason. But I don't know that it's possible to get other people to recognize that. But it makes me wonder about you getting a guide dog or something that would make people notice that you are...

Yes I have this, too. My family thinks I am kind of crazy but I think it is just being highly sensitive.

I have tachycardia and my doctors haven't given it a lot of attention but I just changed doctors and I think she will pay more attention to it as she has me tracking it at home. From an anecdotal perspective I notice my fibro symptoms are much worse with an elevated resting heart rate than when...

Maybe I am lucky but I tend to feel the best in the morning. Unfortunately it continues to worsen throughout the day in a mostly predictable manner. If I wake up and it's a bad pain day from the get go, like today, it's harder. But most days I try to be my most productive in the morning...

I use essential oils. Lavender is great for pain and relaxation, and effective when you rub it on the soles of your feet. Best used before bed. I like grapefruit or peppermint for a pick me up and to feel more clear headed. I often use essential oils in my diffuser while I work in my office...

Welcome Kev, sometimes it's just good to get answers finally.

I hope your diagnosis comes back as you hope!

I do some foot exercises to help my foot pain but since I have not had surgery on my feet I would be hesitant to make suggestions of that sort for you. My exercises are simple ones where I stretch out my toes and then ball them up as tight as I can. I also do balancing exercising on one foot...

I have daily headaches as well ... I also have TMJ disorder in addition to fibromyalgia and today lucky me I have sinus issues as well. Sometimes it's hard to tell what comes from what but I have had chronic headaches for almost 30 years.

Plus if it doesn't help you haven't lost anything ... and if it does help then that opens up more life for living.

Really it's a book about meditation and then stories of people from his workshops who have benefitted from the process even though their outside circumstances haven't changed. It's not so much a way to get rid of pain as it is to be present with it in a way that makes it easier to deal with. I...

I first got me diagnosis in 2014 and I brushed it off and just tried my best to manage my symptoms on my own without the support or a medical professional. I was diagnosed by a rheumatologist after experiencing ongoing joint pain. I thought the diagnosis was probably right but I also thought...

I agree with Jay and Sunkacola, that when I feel that way there is usually some trigger. I am highly sensitive and things trigger me than perhaps others wouldn't even notice, but there is a trigger for me, either external or internal.