Caylee

Hi there
I am one of the first Canadians to be legally diagnosed with FM. So I am very old in FM years. And I've seen it all. I think.

The reason I am here however, is that in the last several years, I've been too sick to really keep up. So I'm mostly out of the loop now.

If I could find any inspiration or help, or gain any new knowledge, it might help me. I've been feeling a little lost lately. My friends are still my friends, but at some point it changes to only social media. This has been very hard on this ex-social butterfly.

I've also moved in the last year for my health. We left Ottawa to a more sedate rural, and cleaner, lifestyle. While some things have improved, others not so much.

At present, I am in bed (usually sleeping) for maybe 5 out of 10 days. There are also other existing condotions that don't help either. My lower back is a miasma of problems, and I have arthritis.

I know I'm not alone in this and sometimes I just need to connect with others that understand. If I have learned anything from all of this, is that folks don't really have a clue as to how disabling FM can be.