Recent content by crystalrosepaul

I've spent the majority of my day planning an impromptu trip for myself and some friends. This will be my first time traveling since my diagnosis. Although I was nervous about how I was going to feel, it felt really good to plan our itinerary and explore all of the things we could do. They...

Yes, I'm back! I've been busier than I like the last few days, but all is well! I'll try to check in more often. I've been amazed at how well I've been sleeping after starting the Delta 8. I hope it doesn't become illegal in my state before recreational-use THC is legalized. I've noticed an...

WOW! That is great advice. I've often thought about acceptance being key to happiness and less stress, but never to mourn who I was. I'm glad that I have friends who are understanding and don't feel like I'm blowing them off just because I don't want to partake in whatever plans we made.

Goodnight! Hope you have the best sleep ever!

Our pools are back open and i live in the country so we enjoy our rivers and creeks too but i haven't done any of that this year. My friends and i used to kayak often and slowly grew our crew from 3 to 15 people.... lots of fun! I realized that i was making allot of changes all at once...

I've had many stomach issues and found that Apple Cider Vinegar Gummies helped. Personally, I take the Goli brand. They make a gummy with Ashwagandha that is supposed to help with stress relief, improve your mood, quality of sleep, and memory. I started taking them last week and they seem to...

It's a machine that helps stimulate your "second heart" which are your calf muscles and some studies have shown that this improves your muscle and joint pain as well as tingling and numbness in extremities, etc., by increasing circulation. Supposedly it operates at a specific frequency as well...

Yes, I've recently added Alpha Lipoic Acid, D-Ribose, CoQ10, SAM-E, and Folic Acid to my daily supplements. Unfortunately, I live in a medical-only state and my options are limited when it comes to CBD/THC combination products. Delta 8 is legal here, for now, so I'm trying it and am pleased...

Xyrem looks interesting. Have you tried CBD or Delta 8? I don't know the marijuana laws where you live, but I recently discovered Delta 8 and am sleeping much better at night without the 30 - 60 minutes of fighting RLS first. Actually starting to get to that deep sleep where you dream vividly.

Norco is hydrocodone (an opioid) used to treat pain. Yes, MRSA was quite an experience. I say now that I am my dog's therapy human because she was definitely my therapy dog while I was bedridden for months anchored to an IV pole.

I too, take gabapentin. I had back surgery two years ago and contracted MRSA and had to have another surgery to debride the tissue, then was on some serious IV antibiotics for about 6 months. (This is how my dr thinks the fibro started.) I also take Norco, but I don't think it helps. I've...

Thanks, Jemima. I'll do some research on "radical acceptance." Hoping you all have more good days coming your way soon!

Auriel-For me it's probably more fatigue than pain. I've never been one to ask for help or say no to someone that needs my help, but I'm learning to slowly change as I listen to my body and put my health first. With the diet change and supplements, I think I have the horrid brain fog under...

THAT IS SO TRUE! No one understands and most think you exaggerate the symptoms. I've changed my whole diet to the 3S's-smoothies, salads, and supplements. I allow myself to have cheat days on the weekends but plan to remove gluten completely next. I lowered my stress as much as possible, but...

After three long months without having what I would consider to be a good day, yesterday I felt great! My pain levels were down, I actually felt like communicating with my co-workers instead of acting like a recluse in my office all day and even laughed, but it was always on my mind-what did I...