Recent content by Eff fibro

Look up **ALLODYNIA**. I experienced that twice, it felt almost like a super intense sunburn but not as superficial... it felt like it was IN the skin or just under it. It felt burned and bruised and any fabric touching it hurt. I had it in my shoulders/deltoids and abdomen, and the other time...

July 2014 I started having sharp shooting pains so intense my limb would spasm. It would happen anywhere, totally unprovoked. My arm, then my foot, the in my chest, the my hand... it was baffling and very scary for me. After relatively normal blood tests, EMG, MRI of brain & c-spine I was...

I would get IBS cramps so bad I'd sit on the toilet, bucket in hand, vomiting from pain. The pain would be crippling, I'd have to wait for a moment between the waves of pain that I could actually walk to the bathroom. My upper GI is still an issue (I'm ALWAYS nauseas and frequently vomit) but...

When I was first diagnosed 6 months ago the Rheumy mentioned gabapentin, lyrica, and Cymbalta but at that time the pain was so intermittent that I didn't want pills. I'm petrified of addiction, it runs in my family and I have seen specks of it in myself so I avoid pills as much as possible, esp...

Hi Nell! Welcome. I've found that this forum reminds me I'm not alone. Some posts have really inspirational thoughts or some funny joke to make me smile. I, too, have the pain in my shoulder/upper back and lumbar region as well. I was getting PT but didn't feel much improvement (which makes me...

:) I love that, going "from happy to sad faster than a whippet with a bum full of TNT"... 'cause I feel that too! It might be a SPCA commercial or my boyfriend saying "you still haven't eaten yet, silly?!" or a look in someone's eye and I break down. I missed a counseling appt yesterday and...

I suffer from IBS as well. I've had pain so intense I had a vasovagal response, got dizzy, nauseas, vomited violently and almost passed out. At times when I'm feeling the pain but can't get up yet, my boyfriend rubs my lower back and it (to some degree) distracts my brain from the pain. Just...

I have a friend who's had fibro for many years and the other day she showed me her breast... she has a red raised rash that she said comes and goes in random areas, sometimes it itches, hydrocortisone helps a little, and she said it's a "fibro rash". She told me to expect it to happen from time...

I've always been an incredibly resilient person but this morning my therapist of 3 years suggested I think about seeing a psychiatrist and taking an antidepressant. I'm at a new "low" so to say. I'm 31 y/o, started having the crazy weird unexplainable pains about 9 months ago, was diagnosed with...

I'm 31 but my body usually feels about 80. I always feel achy, when I stand up I do the hunched over for a second before stretching to a full stand thing... at 31 years old! I feel pitiful to watch. I live by ice and heat packs and stretching but my physical therapist says I need to get to...

Thank you for your reply Tharper, just hearing someone else in a similar situation makes me feel less alone. I'm sorry you're having trouble at work, I hope it gets better or you find a better alternative. I'm dreading the day I potentially make a med error or collapse when trying to lift a...

Hi Paulo, welcome. I'm sorry to hear of your pain every day, it's not easy to deal with. What is anthill in the feet? Have you ever looked into Sjogren's syndrome? I'm not saying you have this, but it is worth looking into. This website lists more symptoms: Do a web search for more information...

Thanks sweed! I have been trying not to worry about the balance test but everything I'm reading about spinal lesions is flipping scary! With eyes open my balance is generally great, except for those blank out moments. My balance changes drastically if I take away aid from my eyes... so I know...

Hi everyone, so lately I've been "blanking out" for a quick second here and there, a few weeks ago I started having moments of complete disorientation, not recognizing where I am or remembering what I'm doing. I saw my primary care dr and he scheduled me for an EEG to check for absence seizures...

That's when we need to look forward to better days and spend today focusing on how to make yourself feel better in the moment. Take a hot bath, paint your nails, do something quiet but enjoyable. Days I have moderate energy I work on my garden (though with cold weather setting in, I'll have to...