Recent content by Eff2013

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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    Thank you RLG for your beautiful and caring words. You seem like a person with a heart of gold. Your compassion and understanding is seeping through the computer. Your response here warmed me inside. And yes, it sounds like a fabulous idea to have someone follow us around, telling us 'nice'...
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    Possible fibromyalgia

    Welcome to the forum MrsNorm. This is truly a very warm and welcoming community. I tend to agree with the posters above. Making an appointment with a rheumatologist will be extremely beneficial. They will be able to eliminate other conditions that may have similar pain to fibromyalgia. I had...
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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    Sorry about the two small spelling errors😔 * father * relief
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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    Mirador, you make a really good point that "everyone is different". The more I read posts here the more I'm convinced that fibromyalgia is a different experience for every person. Yes, it's a SYNDROME. What triggers my fibro might not effect others in the same way. For example I find that I am...
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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    Thank you for sharing your reaction Sunkacola. It's admirable that you didn't have an overly emotional response. Knowledge is Power, and I've found it helpful to research and trial different things. And knowing my diagnosis now has given me a sort of power. It's interesting how everyone reacts...
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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    Yes RLG, it sure is a Pandora's box. No two days are ever really the same. You never really know what the day will be like. I know that even people without this condition don't have total control of what a new day will bring but fibromyalgia makes it even more unpredictable. Unfortunately I too...
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    Reactions to diagnosis of fibromyalgia? Happy? Relieved? Sad?

    I have finally been diagnosed recently with fibromyalgia through an over the phone appointment because of covid 19. I have known this for years and it was finally confirmed. I don't have Lupus or any other autoimmune disease. This is supposed to make me feel happy, right? Well I don't know...
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    New to forum and newly diagnosed with fibromyalgia

    Hi Clair86, welcome to the forum. You have come to right place for advice and information or simply to vent. This is a really nice community and most people are willing to share their stories and offer help. There is some really good information in the " General discussions about fibromyalgia "...
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    Forever suffering

    Hi Tired, your words above really resonated with me "without knowing it, I had internalised all the difficulties, hurt and stress and kept it bottled up until my body couldn't take anymore" . Wow!! This is so true for a lot of people. You are so right, we all need to give ourselves a little TLC...
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    Vibrating?

    I've had this in the past and was quite alarmed by it. I called them "internal tremors". Funny, I used to describe them to the doctor and they would give me a sympathetic look but no answers. Now I know better! 😊
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    Acupuncture for finger/hand pain?

    Hi Kait, my hands have been hurting me for the past month. My pain was also worst in the 'meaty' (like this description) part between the thumb and the index finger. I couldn't even pick up my mug in the morning. My pain was also in the palm of my hand and the wrist area as well. What I found...
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    Oh, I'm not the only one!!

    Hi Pajon71, welcome to this forum.I too never thought that I would write on a forum but I did and it is the best thing I have ever done. There is a lot of valuable information here. This is a very warm community. Just simply knowing that there are others out there who experience similar pains...
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    Sjogren's

    Sorry about the way the doctor was so dismissive. They can be rude at times and trying to get information out of them can be difficult, when the opposite should be happening! Has the rheumatologist done extensive bloodwork to rule out other autoimmune conditions? Sometimes this condition can...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Hi TJB, thank you for your helpful response. I really appreciate it. You mentioned pulsating tinnitus and I must ask you can you hear your pulse near your ear when you are on your side trying to fall asleep? Sorry if this is a silly question. I just want to know if the two are connected in any...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Thank you tjpitts10 for your helpful suggestions. I will look into this "Sacred Sounds". I feel for you having this condition for 20 years. 🤗 Has the severity of it changed over the years? How was your tinnitus diagnosed? And I totally agree with you that it is most annoying at night when we are...
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    Brain fog - Fibro fog

    I know I'm abit late to this conversation but I just want to say that regarding the brain fog I have found fish oil to be quite helpful. I get a really good liquid form. I am trying to do things naturally. I am trying to avoid medication as much as possible. Hope you find this helpful.😊
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    Anxiety attacks

    I just came across this post today and had to add my bit. A TOTALLY agree with what every one is saying about anxiety and the current situation the world is in . It is frightening. I so agree with what you said Maxsmom " PEOPLE WITH FIBROMYALGIA ARE MORE SENSITIVE TO EVERYTHING AND FEEL FOR...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Thank you RLG, I will definitely look into seeing an ENT specialist after first checking with my GP. In order to see a specialist I will need a referral from her first. I hope all goes well. At the moment this lockdown is really making it frightening to visit any medical facility. We are in...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Thank you so much for your very wise words. I will take it all on board! I really appreciate you saying that one has to look into a situation and see if there is anything possible that could help them change it. If not then adapt. To be honest I felt trapped because of the current lockdown. I...
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    Forgetting things

    Hi mariaedilene, try not feel so bad. I know it is easier said than done. I am sure you have read past posts and would have seen that this is one of the annoying symptoms of fibromyalgia. It can be very frustrating. Calling someone by the wrong name has happened to me on numerous occasions. I...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Hi Sunkacola, at the moment I am really finding it extremely difficult to remain positive. I pray that it doesn't become permanent. Last night was another horrible night . It kept me up most of the night and it can be frightening. I felt like I was going to pass out. In the past I have fainted...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    Hi RLG. Thank you for this quick reply. This forum is a godsend for me. Last night was very uncomfortable. I tried deep breathing and focusing on other things (anything BUT this hissing sound) but nothing really helped. 😔You mentioned TMJ and Bell's palsy. I do suffer from TMJ pain and I did...
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    Going "crazy" with constant ringing in my ears. Anyone else affected by this? Please HELP.

    This has just started for me and is very uncomfortable and distressing. At night it drives me crazy. Is anyone out there affected by this? Any suggestion? Is it something that will pass?
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    Drunken walk

    You will find this forum extremely helpful. It is a very welcoming community with a lot of valuable information.I have learnt more about my unusual symptoms of many many years from this forum than from anywhere else. Hope you get the answers you are searching for. And welcome to the forum.😊
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    Silent migraines

    . I had this experience many years ago and it frightened the hell out of me. I had no idea what it was. I thought that I was loosing my eyesight. The way that I can describe it was like coming inside after looking directly at the sun for too long. I had the nausea too. Fortunately I haven't...
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    Propranolol for nausea

    Just want to say my little bit here about nausea. I make the following drink that I find helps with my nausea, it is refreshing and has anti inflammatory properties. Ingredients: - 3 small slices of fresh ginger - 1 lemon slice - 4 cardomon pods Method: Place the above ingredients in a small...
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    Anyone doing a low carb diet to control FB?

    Hi Sunkacola, I have found that going gluten free has really helped me in so many ways. Maybe not directly with pain but with so many other issues I had. The boating and GI issues have all disappeared. Some dermatitis I had since a teenager has all dissapeard. Also I believe that it even has...
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    Is it possible to experience fibromyalgia symptoms only if exposed to a trigger/stressor like a virus or extreme cold?

    Hi Kiwi, I too have had symptoms of fibromyalgia for many years. Not yet diagnosed but waiting for results. Not too optimistic how the consultation will go with the reumatologist over the phone. All because of covid shut down at the moment. 😔 I, like you believe that there is ALWAYS a trigger of...
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    VENT - nothing is helping me??

    Hi Kait, you are only a year older than my daughter and I feel like I want to give you a big hug and tell you that all will be ok because that's what I would be telling my daughter. You have been given some really good advice here. I don't have too much to add but just stay positive. You have...
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    Feeling hot or cold with FM

    Wow! You are all talking about how the hot weather affects you and I am here desperately waiting for summer to return. Winter does not agree with me. I get extremely cold and my body literally stiffens up. I feel that every winter my symptom worsen alittle and new symptoms appear. My body loves...
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    Anyone doing a low carb diet to control FB?

    I have found that eating too many carbs late in the afternoon has always caused more pain in my joints. I also get swollen fingers. (does this happen to anyone else?) Gluten, dairy, nightshade veggies, and high sugar food ALWAYS make my symptoms worse. Believe it or not I have been gluten...
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    Fatigue

    Hi, I am new here too and in the process of being diagnosed. I'd like to say that you are all amazing and courageous. Life is very difficult at the moment with so much going on around the world. Reading your posts makes me feel less alone in this struggle. Having this forum to share your pain...
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    VENT - nothing is helping me??

    Creola17 I just had to comment on the "JUST STARES INTO SPACE" I can relate to that look. My wonderful GP has given me that look so many times it's not funny. This look usualy comes after she has gone through my always perfect blood test results. I am now waiting the results of my final blood...
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