Recent content by ellabrighteyes

hi. totally empathize. can't sleep because everything aches but it hurts to lie down and the fatigue during the day...this is the gift that keeps giving. have you tried a mattress pad? I have one; preheat the bed before crawling in and the warmth really helps all the aches. also, i find that my...

good morning. i use light therapy and heat. i bought an infrared sauna (thank you craigslist) with a chromotherapy function and i find it definitely helps with mood, pain, fatigue. i tried the tanning too, about a year and a half ago when i had my first (unrecognized) flare and it helped some...

Good morning. what forgetmenot said, learning to live a whole new life: that's a kicker. Like you I was ms. go-go-go. "i can do it" was my mantra. more work? bring it on. friends need help or advice? i'm the go to girl. work out an hour a day, focus on staying super slim? all over it (although...

devilstompa, look into tramadol closely. i can't take it because it makes me nauseaous as hell, and to add that onto my pretty chronic nausea these days is a little much. but i've read several negative articles about tramadol of late. l When the 'safe option' painkiller turns out to be lethal...

it's weird the way your mind plays tricks or grabs onto things. i keep calling my doctor by the name of my last gp, who dies about 10 years ago. even refer to him that way to family and friends. then i think, catch myself, and correct. seems it's easier for the brain to hold onto the older...

good morning. i thought i saw in my email a question about the light therapy. i can't find it now, but here goes (also someone suggested magnesium; my cal.mag.zinc definitely helps with the deep muscle pain). yes, the light therapy helps with the fibro conditions as well as depression. i have an...

hi fibro man. thanks for pointing out the weather connection; i suspected it but good to hear other people have the same. for me, it causes pain flare ups and makes the fatigue worse. maybe it's the light levels? i know light therapy helps me. other triggers for me are overdoing, which is a...

hi southernmom84. really rough situation. something to think about: one, would you act this way if he was sick, and two, how would he act if something worse happened? it's tough to live with this. sometimes, when i get the days of random stabbing pains in joints that almost drop me to my knees...

Hi Sarah. I fully get where you are coming from; the idea of companionship would be nice, but yeah, dogs are a huge responsibility and amount of work, and on days where things go south, that could be a problem. I find my cat is good. She's 3, I have quite a few toys for her to entertain hersellf...

i find that i've lost interest in a lot of things i used to do, but i think it's expectations. i can't hold concentration for long periods anymore. so i can't sit for two hours and read, or play piano (also pain), or work out for an hour. but i'm getting better at adjusting expectations. for...

Hi Angela. Fairly new myself, only a couple of months into the diagnosis. For pain in the limbs, i've found weight helps - i put a ten pound weight plate on each leg for a while; it does bring relief. and infrared sauna-ing is helping. at night, the heated mattress pad helps with pain so i can...

it's very frustrating to live this way, and yes, the anger gets me down too. and the depression. and the RA. and people telling me it'll get better soon. ("what part of chronic was confusing to you?"). but the support groups help, and like someone else mentioned, medical marijuana does help some...

morning, needfibrorelief. i totally get not wanting to tell people, not wanting to be seen as different. but like forgetmenot said, there come the days where you just can't do anything, and you have to let people know why. yes, you get a lot of bonehead and anecdotal advice (my cousin's uncle's...

hi disney. sounds like neuralgia which is when the nerves are acting up. (google it). it can be a symptom or a stand alone problem. i had neuralgia in the trigeminal nerve for 20 years before i got fibro. but now i get it in more places (running in my left leg up to the spine today, woo hoo).

yes, knickers is okay lol. the memory thing is the pits. forgetting the word for something - you know, that cylinder thing that you put liquid into to drink - i do that a lot. and i forget what i've told people. i think of something then two minutes later think of it again, and can't remember if...