Recent content by Geeena

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    Newly diagnosed and feeling lost

    Thanks for your post can I ask where you get the lidocaine from - this sounds very useful
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    My list. (Would greatly appreciate any feedback)

    Hi there Re allergic skin reactions etc Please consider what your skin in touch with Henna, any hair dye, sets off dermatitis which then becomes hard to treat. The lanolin in eczema treatments or eye drop treatments or the paraffin can also cause dermatitis. The worse culprit according to...
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    Swollen Salivary Glands

    Hi there - I dk if you’ve looked up Sjögren’s syndrome - I’m not formally diagnosed but I’m treated for symptoms (eye drops) - and I even grew a weird little totally benign stone in my salivary gland that had to be removed in a quick op. Very odd ! We can have a higher chance of comorbidity with...
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    Advice for Intense Back Pain?

    Yes 🙌 Cbd oil great 👍 Also wanted to say that my iron levels and vitb12 levels and vit D levels are monitored by gp Because if these are not at right levels - we will feel more pain. If I can think if anything else I will write more all best .
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    Advice for Intense Back Pain?

    Hi there - sorry to hear this is happening. the things I’m trying out to help are - cutting out sugar and sweet snacks they helped distract me from pain but in the end I put on so many kilos that are going now. Many people have told me this will help with inflammation. So far I’ve still got...
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    More evidence showing fibromyalgia is an auto-immune response and does not originate in the brain

    Thank you for this - very helpful article x
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    Fibro or long-covid

    Apologies forgot to add my sister had 5 -6 mths of breathing difficulties after Covid was given a puffer and shown on X-ray where she had damage to her lungs. She didn’t have this before C19 It’s sorted itself out now but it was definitely a problem.
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    Fibro or long-covid

    My sister had Covid in January 2020. This was confirmed via a blood test given by her employer. She knows she had exactly when in January because she was off work. I was diagnosed with fibromyalgia after years of investigation /neurological treatment and crossing out other diagnoses in February...
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    Question.... I have heard the phrase "fibro Itch" Is this a thing?

    Really do look into the washing powder or liquid you use I found out after changing everything that this can cause all kinds of allergies. Dyeing hair with henna or even other natural stuff too sadly can kick it off. The main thing is to stifle the itch - to stop the cycle. My suggestion wd be...
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    Hummingbird Fibromyalgia Device

    I use a tens machine on/off and can confirm good results . I just bought a basic model about 4-5 yea ago that was on sale in the hospital pharmacy. Since then I’ve bought a few from Amazon at approx 30£ - they don’t remove the pain but they really do create some kind of diversion so that it’s as...
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    Frozen Appendages

    Nose 👃!!!! 🙌 finally someone else talks about their frozen nose ! I sit and seriously consider making some kind of nose warmer. So thank you, no we are not alone ! Do check out raynauds syndrome. Not that I’m a doctor 😆 but I live constantly in fear of the cold. All the best
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    Amitriptyline stops working after 5 months? :((

    I tried it but had such an extreme dry mouth especially at night I couldn’t see whether it would do anything and came off it. I think it’s a case of trying stuff out and finding what works - because of our different physiological make up what might work for you might make me ill. I still...
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    Shoulder pain

    sorry just reread - maybe ukelele later on when shoulders better- also if you in uk ask to be referred to a pain pharmacist specialist and physio have you had c19 ? Ive gad antibodies blood test and tested positive and they think the c19 can affect joints. Its worth considering.. Also no blame...
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    Shoulder pain

    Magnesium rub lyrica ? my neurologist prescribed this idk 🤷🏼‍♀️if its for everyone though lots of negatives about it / it turns the volume down for pain and also stopped night spasms definitely Tens machine - i use almost daily when im struggling vit b12 shots check for anemia and thyroid...
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    Knees buckle

    thank you so much- I’ve had this happen too and couldn’t figure it out ... so v helpful to see this written down
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