Recent content by joonie

  1. J

    Hi everyone! Jersey girl here!

    Hi Kelly -I've had fibro for 25 yrs but wasn't diagnosed until a sleep study picked up alpha-wave intrusions. Is that the same as no stage 4 sleep you're experiencing? I'm to make an appointment with a Dr who specializes in "weird sleep problems" -my rheumatologist's words,not mine. I've...
  2. J

    ITCH no rash

    Hi Brismom, I,'ve had fibro go 25 yrs but it wasn't until a few years ago that I experienced sudden itching mostly on my arms. No bug crawling sensation just intense itching that I'd scratch until my arms were beet red.No relief from oatmeal compresses, ice,lotions -NOTHING! After being turned...
  3. J

    Living with fibro

    Hi Roxy, I'm so with you on the pain issue. I also have complained out loud that I'm weary - just tired of dealing with the pain.I'm on Cymbalta 60mg which was helpful at the very beginning. Not so much now, but indispensable for managing the depression. An occasional tramadol (occasional...
  4. J

    just diagnosed

    Hi! I just joined the forum & your post was so typical of my experiences also. Just wanted to empathize with you & express my frustration with dr's who won't listen to what we're telling them or interpret our symptoms to fit an easily treatable condition. I'm glad you followed your own...
  5. J

    Hi! New to forum

    Anyone else posting in the middle of the night? Sleep is so elusive. Now I have a place to go when everyone else is asleep. Hi, my name is Judy & I've been coping with fibro for 25 years & was diagnosed 10 years ago & now my new rheumatologist doesn't even acknowledge the word "fibromyalgia"...
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