Recent content by Klickkat

  1. K

    unimpressed

    PS my apologies if I posted to wrong person, I am spent tonight.
  2. K

    unimpressed

    Oh yes, I decided to decline opioid therapy after they moved 45 min. out of town (I had to borrow my sister's car to get there)...told them I will try ablation in May when can afford Co pays again...Anyway I asked my primary PA to write Cymbalta which was leaving me in groggy fogginess up until...
  3. K

    Pelvic floor pain

    Me and my twin suffer mobility issues she fell 2 x last month. We both feel that we MUST have Sjorgrens because our eyes, mouth, lips, and nasal passages are bone dry all the x. We take acetaminophen 2 (500mg) with 2 ibuprofen (200mg) once or twice a day if needed and do light exercise such as...
  4. K

    Allergies and flare-ups

    I too believe I've had fibromyalgia tag along conditions as young as six. I was never able to hold my pee during long school assemblies, that, I think was the Interstitial cystitis. Then 13 years later, got IBS. At about age 32 came excruciating neck muscle and tendon pain, which I believed...
  5. K

    Symptoms- recently diagnosed

    B4 I knew I had fibro, I went through the pounding heart episodes that terrified me. Nothing I did slowed it and it lasted hours until I ended up getting to the ER one way or another. This went on for months and thankfully that particular symptom apparently burned itself out, I hope this...
  6. K

    Chronic UTI’s

    With my fibro symptoms comes a condition named Interstitial cystitis which when in a flare causes extreme UTI type symptoms, I have lay off caffeine colas, coffee, and citrus for a while when happens and take pain relievers.
  7. K

    New pain in random areas

    I had jaw pain with a clicking sound upon opening my mouth when I first became ill. I(it has since abated) My older sister who has Fibro too had it and went to her dentist who diagnosed TMJ. I think she wears a mouth guard sometimes. My twin who is probable Fibro started to get the jaw pain...
  8. K

    Hair loss(extreme)

    Over the past month I have lost half of my hair. I haven't colored it nor do I use heat on it or any products other than shampoo. Just wanted to touch base to find out if this has happened to anyone else recently or in the past. I've always had really thick hair. I haven't changed my diet or...
  9. K

    Eye issues

    I seem to remember my sister's dentist told her she had Sjogren's about 20 years ago. Isn't Sjogren's a sister disease of Fibro?
  10. K

    Eye issues

    Thank you, I am going to ask her to try it!🙂
  11. K

    Eye issues

    I believe it is that we feel things more in magnification, just so weary of it all but we muddle through some how. Right now my sister is beside herself with eye feeling like it's being scraped. I can't seem to console her.😐
  12. K

    Eye issues

    I get burning eyes, sometimes watery and occasionally a stabbing pain in eye. Does anyone else want to share any eye issues? Oh and my sister who also has it describes it as a wire brush moving over her eyes.
  13. K

    Stomach aches

    I was diagnosed with IBS at 20 then Interstitial cystitis at 50 then shortly after that, Fibromyalgia. I have had bouts of morning nausea usually lasting about a week at a time off and on for 16 years. Remembering back, I had urinary problems early as ten years old and neck and shoulder pain...
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