Recent content by mariee

  1. M

    Go get a job! Not as easy as it sounds.

    So I've been researching online jobs, and a full time or part time stable job online is just as hard to get as offline. I've applied for some costumer service ones but I don't have much experience in that so I'm not sure they'll hire me. In the meantime I've researched micro jobs and while the...
  2. M

    hairloss

    I experienced hair loss when my symptoms started, but the hair grew back. Then I started having hair loss again while I was in collage and now it seems to have stopped. I think in my case it could have been connected with stress.
  3. M

    Migraines with Fibro Flare?

    I do get migraines, usually the headache comes with dizziness, nausea and sensitivity to lights and sounds. Usually the dizziness and nausea start before the headache.
  4. M

    Hair Hurts

    I've only had my head hurt if my ponytail was too tight or if I wear a bun for a long period of time. But it's not like a stinging sensation. I have long curly hair but it's thin so it's not too heavy, but when I pile it all in a bun for too long it feels heavy and painful, or if my ponytail is...
  5. M

    What is the Best Over the Counter Pain Medication that You Have Used?

    NSAIDs don't work much for fibro pain because usually the pain isn't caused by inflammation. I've stopped taking them and when I do feel I need them what I take is generic ibuprofen from Walmart.
  6. M

    Stress

    I think stress does make the pain worse. Usually my stress was either school related or money related. I found that after removing myself from a stressful situation my pain got better. Also I find that when I'm more stressed I tend to have unhealthy habits (bad eating, not exercising) and when...
  7. M

    Go get a job! Not as easy as it sounds.

    Yeah. I think not trying to understand is a big issue. A lot of people think that if they can do something then everyone must be able to do the same. I'm sure it's not like that and even between people with the same condition what we can and cannot do is individual. Nobody's pain is ever the same.
  8. M

    Are you awake a lot

    I sleep 8 to 10 hours but always wake up a couple of times during the night. For a while I would wake up about every hour and when I finally woke up I felt more tired than before going to bed. But after I bought a better mattress now I only wake up like 3 times at night.
  9. M

    Cracking joints

    Only my left knee. Every other joint is fine and I never hear any cracking. My mom also has problems with her left knee so I don't know if that has anything to do with it.
  10. M

    How do you cope?

    I met my partner online, then in person. :)
  11. M

    Worse in summer

    No. There's not much variation between the seasons here so I don't experience this.
  12. M

    Who's been to the beach this summer?

    I've been to the beach 2 times this summer. I wish I could go more, but my partner works almost all days so we don't have time to do all the things we'd like. I love the beach, I don't know why but it's just so relaxing and fun. The sun can sometimes be too much, I think the key is to avoid it...
  13. M

    Hello there!

    I was a teenager. This doctor the first time I saw her scared me talking about lupus and without doing any tests she was almost sure that's what I had. So after the tests were all negative she said in a very strong tone to my parents, in front of me, that I was probably lying for attention or to...
  14. M

    Does CFS affect your Sex Life?

    It does a little but my partner is understanding of my condition. Sometimes I'm just don't feel well or feel too tired for sex. I don't believe in forcing myself to perform when I'm like this. My partner has told me he sees no point in sex if I'm not enjoying it and so he doesn't pressure me. We...
  15. M

    30 years of back and forth

    Hopefully this doctor can diagnose you and help you with your treatment. And lets say it doesn't work out, then don't give up and look for a second opinion or another specialist.
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