Recent content by nikilee

I'm so sorry I'm just now seeing this, I've had a lot going on. Well you're not alone, I've talked to many people who get tired of being treated like they are crazy, I hope you don't really give up! A bit about the dermatomyositis; my immune system attacks my muscles and skin. So when I'm in a...

I was going to ask the same thing, are you on any meds? I lose A LOT of hair from stress and meds. Specifically methotrexate and prednisone. Doctors say once you stop taking the meds. the hair loss with subside too. I hope that you get help soon!

It's really sad how the system works. I was denied twice and waiting for a hearing now. I'm hoping my doctor helps make a good case for me, he tells me that I can't work and I know that I can't work, but what he writes for the judge could be a whole different story, I'm wondering if he's the...

Thanks for taking the time to welcome me, I appreciate it and am glad to be here. I agree that we have a lot of similar symptoms too. Have a great week!

Ditto here! Gardening, pulling those weeds, even though it kills me for days (weeks) after! I love the way the garden looks after but hate the way I feel. Don't even get me started on the painting I decided to do inside of the house :-/ Wishing you all well!

I like to paint. I paint on canvas and wine glass and sell them (very, very, very small business). I had to take a break because my hands started to shake pretty bad, but I'm back to it again. It's nice having a hobby.

Hello everyone! I'm Nichole I haven't been diagnosed with fibromyalgia. I believe I may have it as I have been diagnosed with a rare autoimmune muscle disease called dermatomyositis and FM is something that likes to tag along, same with lupus and other autoimmune diseases. I do have chronic...

Hey everyone, my doctor prescribed tramadol, it works for some people and it's non-narcotic, but it really doesn't touch my pain. I haven't been diagnosed fibro, I have chronic pain related to an autoimmune muscle disease amongst other things.

Hi! It's really free, and once you click purchase it should give you the option to send to your online kindle :-)

I know you mentioned having muscle and nerve testing, but did it include a muscle biopsy? I ask because I had similar symptoms and it took the biopsy to find my diagnosis. (Dermatomyositis) An autoimmune muscle disease...

http://www.amazon.com/Fibromyalgia-Guide-Understanding-Journey-ebook/dp/B00BB0AQ3E/ This is a free download I believe only for today on Amazon, hope it's helpful!

I actually do have a great general practitioner now that you mention it, and it's thanks to him that I was finally diagnosed with the DM. Thanks for reminding me about him! I will give him a call and set up an appointment. Hopefully he doesn't tell me to see the rheumy! lol I guess I'm just so...

I was diagnosed with dermatomyositis in April 2012, which is a rare autoimmune disease. My immune system attacks my skin and muscle. But lately I've been feeling like I may have Fibro also, but I really don't want to bring it up to my Rheumy because he is already difficult to talk to, plus I...

Wow, thank you for that list, I've been wondering what all was on it. That is a lot longer that I had anticipated. But really I agree with Libragirl, the only one I really would miss is tomatoes, I like those, and my grandma told me they aren't a night shade plant! Shame on granny!

You are entitled to as many rants and vents as you want, I've found so many great friends through online support groups. They are so patient, without them I don't know what I would do. You are going through a lot, and sometimes our family and friends just don't understand so we have to rely on...