Recent content by rhionna

I started having symptoms when I was younger, around 13, but it was before fibro was widely recognized. For a long time, people thought I was dramatic or a hypochondriac -- I can empathize with what you're going through, but it must be so difficult at such a young age. I'm 36 now, and there are...

Nick - thank you for your input. This makes so much sense to me now! I'll be at the store, and if there are a lot of grocery buggies rattling around, it gives me anxiety. It feels like it's closing in on me. I didn't realize it was part of this, but I knew something wasn't quite right. Even the...

Does anyone else have an issue with things feeling way too loud? I work as an engineer in a manufacturing facility and whenever they open/close the large bay doors it feels like my ear drums are going to vibrate to the point of imploding. For a while, I thought that my sensitive hearing was due...

My heart really goes out to you. I don't have children (due to a childhood cancer) but I have a nephew and I don't know how he runs around so much and never gets tired. I hope that you're not doing this all on your own - it's so difficult. And don't think you're letting anyone down (easier said...

I just want to say -- You are NOT weak at all for struggling with pain! My goodness, you're so much stronger than you realize. Everything suffers when you suffer, I think we can all definitely relate to that. The housework doesn't get done, the cooking doesn't get done, we don't get to interact...

I have extreme numbness in my feet. I chalked it up to diabetes, and I do believe a great deal of my issues can be as a result of neuropathy. However, there is a strange sensation that doesn't fit neuropathy and I can't help but wonder if it's due to FM. I have SI Joint arthritis, which is early...

I get B12 injections as well as supplementing a B-complex with vitamin D and this helps me a bit. It doesn't take away the fatigue, but I definitely have more battery life than I used to. Clean eating helps, I think, but that could also be a mind-over-matter thing. When I cut out processed...

Hello! So sad to hear you've been struggling for so long. There may be some pain medication that your PCP can provide to you that may not make you nauseous. I take tramadol and I don't have any illness side effects - but if I take Vicodin or something like that, forget it. I'm not sure how it...

This resonates so much with me. After a while, people think you're just 'lazy' or have a case of the Fridays. By the end of the week, I'm so exhausted that I usually end up with a migraine or physically unable to move - so I couldn't make it into work. My employer ended up terminating me for my...

I am taking gabapentin (500mg twice a day), tramadol (100mg once a day), citalopram (40mg once a day) and I supplement Vitamin D, turmeric and I am looking into B vitamin injections. Some days, this covers it for me. Other days, I can't move very well at all and I'm in a lot of pain with fevers...

Hello! I'm Rhi, I'm also new to the forums. I take gabapentin (pregabalin) and tramadol. I take 100mg of tramadol and I tell you what - it gives me a good 8 hours of really good relief. I still have bad days where it doesn't touch the pain, but I'm so fortunate to find that little bit of...

Hello! I'm also new here, so I thought I'd reach out. You know, your story about growing pains super hits home with me! I had them as a kid and my dad used to rub my legs and tell me he was getting the 'gremlins' out. I didn't even connect the two until you said something. They misdiagnosed me...

It was this documentary that gave me the courage to reach out to others. For so long I was hiding my pain. I would be crawling in the bedroom and cry out in pillows so no one could hear me. I would tell my partner I was working late when I was actually taking a nap before I drove home. I told so...

For years, my previous doctor told me that I was exhausted and in pain because I had sleep apnea even though I never once snored or stopped breathing in my sleep. He told me I was overweight and all my pain was because I was too fat. (I don't disagree that my weight was an issue, however at this...