Recent content by rhoda1972

I have not but I have had had this off and on for over a year. It has just never lasted this long. ☹️

I have a weird feeling in my neck, throat and collarbone area. I can’t really call it pain - more like an ache. It has come and gone but now I am going on a month of non stop. I also wake up a bit stuffed up. I do not have a cold or anything. I have had a chest and neck CT and been to ear...

I haven’t tried CoQ10. Will read up on it! I have finally been sleeping better last few weeks. Working on 5e exercise as some days are hard. ☹️

Morning! this is a new one for Me. I have always had aching kind of pain I. The front of my necm but this morning I woke up with what feels a bit like a sore throat and pain into my ears. Anyone else experienced a sore throat feeling?

hi karen! I was just diagnosed recently too! What kind of symptoms do you have?

I agree - it is somewhat comforting reading posts and seeing that others are experiencing the same. I was starting To think I was losing my mind after a few years of so many random symptoms. What kind of symptoms do you have? Last few days have been ok for me but this morning I woke up with a...

I have been trying to be active and get some exercise in every day. Some Days that is hard. 🙁

Last 2 days have had neck pain at front of neck and feel like a bit of a sore throat. Anyone else had this?

Yes it does! I have arm pain often too so it’s always so scary. Have had ecg and chest X-ray and they were fine. It’s always so scary.

I feel you! Mine was high again this morning but fine now. Do you also get Clammy hands and feet when it’s elevated?

i feel the same way! I feel worse when elevated heart rate. And when my heart rate is high I definitely get anxiety and worried that I am having a heart attack. My normal resting heart rate is about 65 so for it to be at 120-130 at times is very scary. I am glad you have new doctor and that...

I have had this for a year or so now. Had gone to ER last April because of it. This morning I woke up and had racing hear - 120 bpm and had sweating feet and hands. Has anyone had this?

So this is all new to me as I was just diagnosed a few weeks ago. Does anyone get fluttering in their chest and arm and shoulder aches? It scares me and I feel like it is heart related. I have had it before and went to ER the first time and had several tests to rule out heart issues.

I get facial and jaw pain also. I also get ear aches and neck aches as well as pain in my collarbone. 🙁

Thank you! I have been exercising and trying to sleep well. I find that is a challenge a lot of nights. 🙁 I am going to physio for first time today as well!