Recent content by sandree

  1. sandree

    Looks like I fit the criteria now

    I am thinking one difference between the guidelines for CFS and fibromyalgia is on exercise. With CFS, the recommendation is to be very careful with exercise as it can lead to long flares. With fibro, it looks like there is more of an emphasis on pursuing exercise. Do you generally find that you...
  2. sandree

    Looks like I fit the criteria now

    I have had chronic pain and a host of other symptoms (flares of pain that moves around my body and gets stuck where I have any kind of strain, TMJ, pelvic floor issue, vertigo, insomnia, brain fog, blurry eyes, digestive issues etc.) for 15 years - I think post infectious and post extreme...
  3. sandree

    I think I could call this fibromyalgia

    I have probably had NADH in some other combination supplement but have not tried it on its own. I’m mostly trying pacing my activities now along with very basic supplements. Also trying CBD oil very cautiously. I think it may help with sleep sometimes. I also have celiac and when I get glutened...
  4. sandree

    I think I could call this fibromyalgia

    Thank you so much for taking the time to share your experience. I did make a break from the nutritionist and cut back on any supplements that I felt were aggravating. I don’t feel as flared up so it is clear they were not good for me. Digestive enzymes with HCl in particular as I started getting...
  5. sandree

    I think I could call this fibromyalgia

    Thank you so much. I think I do need to pursue some kind of diagnosis and I have not been tested for any of those things. I agree that cutting out all of these foods and adding tons of supplements all at once is proving to be more harmful than helpful, as I can’t figure out which of these things...
  6. sandree

    I think I could call this fibromyalgia

    I have been trying to recover from whatever happened to me about 15 years ago. Started with chronic hives and developed into various autoimmune type symptoms over the years, including pain that moves around my body, neurological symptoms like brain fog, anxiety and impaired handwriting when I...
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