Recent content by Scrambles

  1. Scrambles

    Check in :)

    I apologize if I came off as light-hearted, or unconcerned about what is going on. Trust me, the constant state of anxiety is not helping my pain levels and I can only watch in horror at what is happening on the news. My twin has COPD, is over 60, still smokes cigarettes, is not in great health...
  2. Scrambles

    Check in :)

    Just watching how this Corona Virus has turned the world upside down so quickly, but otherwise it’s just an average day for me.
  3. Scrambles

    Facial Cramping?

    It sure is hard to describe some of this stuff to the Doctors. But we know that we aren’t crazy. This is actually happening to us and at least here, on this forum, we will get a sympathetic ear (or should I say eye?) and maybe even some helpful advice, which is sometimes more than we get from...
  4. Scrambles

    Brain fog - Fibro fog

    For me I found that one huge culprit of brain fog was medication side-effects, which is something I think does not get enough attention. The recommended dose of one of the main drugs usually prescribed for Fibro gave me such brain fog I was lucky if I found my coffee in the morning. It was bad...
  5. Scrambles

    Facial Cramping?

    Does anyone else experience random facial, well... I call it cramping, although sometimes it almost borders on pain. It mainly seems to flare around my mouth and into my cheeks, turning them beet red. It’s not a hot flash. I went through that nonsense ten years ago, so I know the difference. If...
  6. Scrambles

    Fire and Ice nightmare

    I understand what you are saying about the exaggeration of sensations (or lack thereof) and the mysterious bruises, and I agree that a positive attitude is key to living with this illness. I was also on heavy opiate use for 15 years which probably masked the onset of the symptoms of...
  7. Scrambles

    Fire and Ice nightmare

    And no one likes to think they are nuts! Doesn’t that just drive you crazy?! :p :LOL:
  8. Scrambles

    Fire and Ice nightmare

    I’m sad for anyone who experiences pain like this, or any nasty pain at all, but somehow it helps to know that maybe I’m not alone. Thanks for the responses. It helps. :-)
  9. Scrambles

    Hello. Yes, I’m new.

    I eased myself onto your forum this week because I wanted some “Community.“ I’m probably not your average diagnosee— in that I was 60 before the verdict was handed down. I also live in the North East, so I know what it is to have stage 3 Lymes Disease, which is also not fun, but is curable with...
  10. Scrambles

    Fire and Ice nightmare

    My Neuro told me this was due to a small nerve fiber issue, but the sensation is fairly horrific. Does anyone else ever experience the sensation (I get it mostly in my legs and feet,) of being both dipped in a vat of boiling oil and of freezing to death? I know it makes no sense, and my Drs...
  11. Scrambles

    depression and lack of sleep

    Sorry you had such a bad night. Have you tried any of the topical creams? I’ve had some luck with Diclofenac Sodium gel, (aka Voltaren) which you need a prescription for. My hands have also been really sore and I found the gel to be moderately useful, without all the side-effects of an oral pain...
  12. Scrambles

    Hello Everyone

    I was diagnosed with Fibro this last June after a ton of tests, which I’m sure all of you have come to appreciate. As there is no one test to determine Fibro, we sufferers are subjected to an extentive battery of blood, X-RAY, CT-SCAN, and MRI tests, which basically rule out everything else...
  13. Scrambles

    HELP!!

    The one who finally diagnosed me was a Neurologist, in conjunction with my Primary. I was subjected to, well,.. I can’t even remember how many blood tests for everything from Lymes Disease to Vitamin panels. X-rays, CT-SCANs, and even two MRIs. Since there is no test for Fibro, they basically...
  14. Scrambles

    Sensations

    It’s as if you were kicked into a “ fight or flight” response mode. Like you were a zebra surrounded by lions, and every sense has been kicked into high gear. That’s great to get you out of immediate danger, but when your body sustains that and subjects you to that level of sensitivity hour...
  15. Scrambles

    depression and lack of sleep

    The temperature issue is a real pain in the butt, for sure! I’m always fiddling with the thermostat to no avail. Or it’s blanket on, blanket off, all night long along with my insomnia. Gabapentin made me so spacey and forgetful that I couldn’t function. I’m on Lyrica now and it just doesn’t...
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