Recent content by shoshosho

  1. S

    CPAP

    My Neurologist suggested a sleep study because of the fatigue. Tried CPAP for three months, first the nose hose, didn't work awful burning. Switched me to the mask no luck. Could not sleep and made it worse. Everyone I know that has gone for a sleep study needs a CPAP. Seems to be a lot of...
  2. S

    Car travel

    I get it completely. But feet on the dash a very bad idea. I recall reading an article about a woman who did just that and the injuries were severe. Only thing that works for me is hoping in the back to extend my legs. Of course this does not work as a driver as I can only take about 20-30...
  3. S

    I'm worn out from the pain

    To the OP, you had mentioned you have to push through it every day. By 2016 I realized the more I pushed the worse it got. I found that I needed to balance my activities. Last august my neurologist recommended Medical Marijuana, before my Fibromyalgia diagnosis. Once I got the dose and type...
  4. S

    Increased Pain with Marijuana Use?

    Smoke/Vape definitely made it worse for me. Then my doctor switched to High THC Low CBD edibles. 9.5 mg THC and .5 mg. CBD. First time I took them totally different reaction. I could feel it kicking in as the Pain melted away. Was a miracle for me. Everyone is different I guess.
  5. S

    What to do to help flare

    I have experienced flares that left me in a fetal position for hours/days/weeks. I feel like I want to crawl out of my body. My doctors have prescribed so may meds, they all have side effects including Dizziness, confusion etc... Makes perfect sense right? As far as rest, that is the number...
  6. S

    Just Diagnosed. Why Did It Take So Long?

    Thank you all for your responses. My first post was difficult as I still felt that what I am going through is in my head, 10 years of seeing doctors who made me feel that way still sticks with me. It is really overwhelming to have received responses by others who are going through what I am...
  7. S

    Just Diagnosed. Why Did It Take So Long?

    I'm a newbie here. Diagnosed with Fibromyalgia on 5/4/22 by a rheumatologist. Follow-up with my primary and diagnosis was expanded to Fibromyalgia with overlapping symptoms of CFS on 5/11/22. I knew nothing about Fibro/CFS prior to my first visit with my rheumatologist on 5/4/22. They had...
Back
Top