Recent content by Shyest

I'm new also! Got a Dx of fibro and UCTD a few years ago, UCTD is an autoimmune connective tissue disease (ACTD) in the same family as lupus sle, sjogren's, etc... But It lacks fitting into a nice diagnostic box and has symptoms from multiple other ACTDs, so it is called "undifferentiated." Some...

My breasts feel fiberous somewhat to me, but my gyns have never pointed it out. I used to have tremendous pain in my breasts, I took evening primrose oil supplements for it and found it was quite helpful. I have since been told there isn't much evidence for why it works or if it really does or...

Have had "localized" fatigue in my arms, had to wait it out, never found a solution and it wasn't caused by compressing anything which often happens to my legs and causes a sort of just tiredness and numbness and pins and needles feeling. My arms just felt tired and moving them seemed to take so...

I am so sorry you are going through all this! I just learned about HS this week because I believe my friend has it. She is trying to get a diagnosis, but is encountering difficulties for a variety of reasons. You have my sympathy for dealing with this awful condition and everything else. It...

Ah the conundrum of being taken seriously. Certain factors can increase not being taken seriously, for example: Being a woman (in most places) Being non-white in majority white countries, unless the disease occurs mostly in non-white populations and as such can become somewhat opposite Being...

My knees have popped out since I was a kid, patellar dislocation is a gentic issue that tends to run in families, but can occur spontaneously in some individuals and should be traditionally treated with physical therapy, braces or support, and worse case surgery. It can also occur in people with...

Ah I wrote a long reply to you, but unfortunately my tablet is very angry today at me so I lost it. I guess the short version: Have a conversation with your doctor with *why* exactly she feels fibromyalgia is a diagnosis. Is she attatched to it? Does she feel that if new evidence arises that...

The 3 mainstay fibro meds right now are: Lyrica Cymbalta Savella Lyrica is an anti-seizure drug, it was created as a refined version of gabapentin which is used occasionally for fibro, seizures, anxiety, and post-herpetic nerve pain. Cymbalta is an SNRI antidepressant, it is the oldest of the 3...

I'm the master googling fake internet doctor of all my friends. I look up my own symptoms I look up theirs, I tell them what to ask their doctors if they want to hear it. But some symptoms are genuinely scary because some conditions are genuinely terrifying. It makes sense to be nervous by...

That's tough, it sounds like you have a nerve issue in your hands more specific then fibro - did they ever do a nerve conduction test for you I wonder? With that said I am not a doctor. I don't associate a "true" neuropathy with fibromyalgia which I see as a more generalized affliction, others...

It depends a lot on where you are vitamin wise at a base... If you get in at some point to a GP/PCP get them to run basic vitamin + CBC panel + 3-4 of the thyroid panel [TSH, T3, T4, there is another but I forget I think it is linked to hashimotos] + diabetes screening [fasting] if you haven't...

Well I wrote a long post but my browser crashed haha. I guess here is my TLDR: Cutting out soda and bread really helped me lose weight when I was younger- you replace soda with seltzer water (no corn syrup, no sugar, plain!) and bread with well nothing. Walking is good for weight management...

I think the official marketing name of this diet you were placed on is the virgin diet/protocol. I have never tried it myself but have done elimination diets before, they didn't help me but I really wish you luck and hope you get some relief!

I have burning nerve pain in my feet. I used to think there was only one type of burning feet pain, but there's really several, pain is much more complex then people say it is. It depends on the location of your pain- If I were you and you wanted to pursue with a doctor is print out a diagram...

Hey I live in your area! I have never had anemia that I know of, used to take iron small tablet supplement because I was vegetarian, now vegan. I've had my levels checked pretty consistently in the past few years and I've always been exceptionally normal with my iron. I did have vitamin D...