Recent content by squishpunk

bit late to the party, but im wondering if maybe it's just your spinal fluid moving? is it ever accompanied by a sensation like something trickling down your neck? im able to feel and hear my spinal fluid moving sometimes. ive always described it like sand moving down an hourglass or falling...

Ahhh, making it a game might help! I've seen ads for self care apps that I might be able to tailor for this, so my fibro foggy ass doesn't have to worry about keeping score XD Thanks so much for the idea!

A bit late to the party, but I hope this is still helpful! I'm 24 (23 at the time of all injections), in the US, and had the Moderna vaccines and booster. With each injection I had 3-5 days of severe fatigue, along with worsened all-over pain, chills and sweats, but curiously enough no fever...

Yes, I think I'm still in a bit of denial if I'm being honest with myself 😅 Getting a diagnosis was a huge relief, yet I still resist doing (or more often, not doing!) things that would be better for me at this point than just trying to push through as I always have. I'm too stubborn for my own...

Yes, love spoon theory! Have been using it for a while wrt mental health stuff, and it works so well for fibro-related issues too (actually ran out of emotional spoons after writing the initial post, and thats why it took me so long to get back to you. Sorry about that!) I'm sorry to hear you...

I've always had dissociative issues (depersonalization and derealization) but attributed them to anxiety and depression because once I got medicated and in therapy for those, I stopped having dissociative episodes. But it seems like the chronic pain from fibro has set me not just back to the...

Thanks for your reply. I'm lucky in a sense that so many of my family members also struggle with their own chronic illnesses- they've given me a lot of the advice in that post! Doing my best to act on it, but some of its very hard at the moment. Hoping I'll get there someday.

Hi everyone. You can call me Squishy or Punky, I don't mind either one. My pronouns are they/them/theirs. I'm 24, from the US. I was diagnosed with fibromyalgia less than two months ago, after a solid year or so of investigating potential autoimmune diseases first (none discovered). I come from...