Recent content by sweetkamie20

It may or may not work but there are "acupuncture pens" which some people use on themselves. They sell really inexpensive ones-$10-which makes me suspicious if all of them are good. I have no idea if they work because my husband, who attended acupuncture school, just applies pressure on my...

I can relate. Never in my life have I wanted to have my "own" children or fantasized about getting married/having a wedding. The thought of labor, delivery, and just carrying makes me shudder knowing the toll it would take. Since childhood adoption seemed the best choice...I am married now but...

Are you the person that mentioned "my" GABA? I am really interested in learning about it but my searches are not real productive

I cant pick so I will use both 😂 and 😒 that blog must be SUPER long- there's lots to remember! How do I find it? Sorry about your sinuses. Totally relate to not even noticing stuff. I went into (slow) anaphylaxis a few times and didn't notice until someone else noticed 😬😂.

Listening to your story reminded me that I don't have the energy to try and persuade anyone to do a good job. I think I have given some clinics the benefit of the doubt too many times...

I thought I replied to this but it looks like I didn't 😔. Probably because I come on here late at night. I did go through the questionnaire. I didn't meet the qualifications. I can't be trusted to identify health issues though. At my fibro eval the Dr looked at my chest and asked if it...

I understand your concerns. It can be scary and intimidating to be told there is a "family assessment" coming. I hope you don't worry about it because there are some simple ways to improve how well the assessment goes, and, like has been said by many here, the government (in the US at least)...

Your post is nothing short of articulate. I think it gave us a good idea of your journey and that is a good thing. Sounds like that NP is an angel! In reality this is probably the best (and maybe only) place to be reassured you're not crazy and to take an opportunity to really vent...

Hello, I wish I had more practical advice but what I do have might change your life as well. My career has been analyzing children and their families-lots and lots of them. These are 2 things to remember about kids: #1 they often don't need all the things you believe they do, and #2 the...

Fair question: how to know if your doctor is good. His response is sort of surprising since, as you said, you are calm by nature, etc. Also, I don't know if anyone has ever been "cured" of fibro-they just manage it very well. This leads me to consider that you felt like you were given false...

how did i completely understand that?! 😂. That's amazing! Is it famous?

makes sense!

jay, you are an amazing person-a riddle-solving wizard. your situation is 10 times harder than mine but you have found your way to some solutions. as soon as i start to get discouraged solving my own riddles, I will think of you :) the self-determination aspect is wildly helpful and superbly...

Thank you, sun. I keep looking for a shortcut to figure my own needs out 😬 But I have heard so many of you say the same thing: each person is different and will find their own way 🙂 i will have to be patient with myself as I make mistakes along the way. I am so grateful to have found a place...

Hi, Paulfoel, I'm still learning about fibro and how to manage it so I am really naive to the longterm perspective 😬 From my newbie perspective, there are some things I find worth trading for. I love to garden! We just bought 20 plants and planted them. I did expect to pay for it for the...

This deserves to be a meme

Elementary question but I would like to know 😬 if I rest every time my body is giving me some grief (even when it's just a little) will I find overall I have more energy and time to do things or will I find I spent more time resting and less time feeling really bad?

That would be amazingly liberating!

Sorry that you need to be here but glad you found a warm place to be ❤️

Sunkacola, I read your info for newcomers post-so amazing! You struck a super positive and super gracious tone. I found it hopeful and real. I was disappointed in some comments on it, but I am betting that in those times when we are looking for validation of a specific experience we might...

I totally do, too! It's this weird dynamic where because I'm not bedridden or totally debilitated I feel like my health is insufficient reason to live on different terms than normal. I just wrote about this. I feel guilty because when I am home I find a way to sort of do normal things but I...

how fortunate that your wife gets it ❤️❤️❤️ i am sort of alone trying to figure it out. I feel a lot of pressure from people to show up for things even if there is no pressure. To be real, events are the most exhausting. I would like to be committed to fewer and often I groan thinking about...

i am not ready to flip the switch yet :/ i just push through the best i can but it does seem to get worse almost immediately. still i keep pushing. sort of scary because that 6 week flare was horrible and i dont ever want to go through that again. ugh

good point! definitely an international reality!

did anyone else avoid admitting to themself how bad things were? did anyone question if they were just lazy or exaggerating how they felt?

I am new to the forum and havent read this whole thread but, just in case no one has mentioned it, fibro patients nationwide use significantly more medical support than many other groups. theres an army of us going to the doctor more than an average person. so, its not just you going to the...

honestly, anyone sharing any info about their symptoms is cathartic in itself. by hearing from everyone their experiences I find it easier to accept my own for what they are. does that make sense?

so, basically, is it when you are physically tired and then get a surge of adrenaline that triggers a flare? when i am emotionally or mentally tired and fight hard to concentrate i often get triggered...

You are seriously a target hunter. What sort of bad reactions do you get to supplements? i go into flares from many of them. i HATE trying new supplements. its basically the same as saying, "it is worth the try even though theres a 99% chance its going to trigger a flare." Maybe I need to...

are your seizures resulting from fibro? that is quadruply crappy. I, like you, thank God my symptoms are not worse than they are. There are plenty of people who have it harder than me. As for seizure meds: which have you tried? I take Lamictal now and I am happy with it but it doesnt stop...

thanks for replying so thoughtfully! My neurotransmitters are a mess lol I have a seizure disorder so, yeah, I know a little about them. Neurotransmitters are partly regulated by the brain so I wasnt surprised when I read a medical research paper about fibro which claimed brain images of...

hello, all, first I want to say that I am sorry I didn't know about fibro earlier. I would have been one more person acknowledging the distress fibro brought you and refuting the notion that it's somatic. I feel like a lot of you had to walk a hard road alone for awhile. I thank each person...