Recent content by TinaL

I have a dog,he is a 4 year golden retriever that we got just before my diagnosis. He is great company while hubby is at work but he also needs a lot of attention. Most days I can let him out when needed and we have a big fenced yard so he can go out and run around but other days when I am in a...

I get bad spasms in my legs all the time. The rest of my body gets them also but not as bad. My Dr can find no explanation so Fibro related is what I have been told. I take a muscle relaxer at bed time when it gets bad otherwise I just rest/nap to help. Fibro causes our nerves to be on...

Hi Lana Sorry haven't messaged in a while. Just wondering how you are doing with your disability claim? My seems to have stalled. I keep phoning them about it but they say that there is a huge backlog and they will get to it when they can. Hope all is going well for you...

My husband just bought me a pair of "pajama jeans"" and they are the most comfortable item,besides my actual pjs. They are soft like sweats or pjs but look like jeans. The waist is a stitched band so no elastic or seams to poke/bother. I spend my days in very soft/loose pjs usually because my...

Picture of sculpture made from windshield glass. My daughter sent to me and said it made her think of me and how Fibro can turn your once comfortable body into something painful. Brought tears to my eyes to realize my kids DO get it and I just wanted to share.

Just wanted to say hi. I live in Nanaimo and do not see many Canadians on the sites/forums I go to. I was diagnosed about a year and a half ago, although I am sure I have had Fibro for at least 20 years.

I have a dyson stick and a robot sweeper. Unfortunately I can no longer do the housework without going into a flare. I do the dishes daily, laundry as needed, dust when I can and the robot sweeper once a week. My hubby hired a woman to come in for 2 hours once a week to clean the...

Hi Lana I just received my letter saying that the Tribunal will look at my file. Now I just have to wait and see if they will reverse the other decisions,schedule a hearing or say no. This part is the longest apparently. Hope you are doing well.

I use a down matress topper and am very satisfied with how it helps my sleep. I have a queen size bed and paid about 100 bucks for it. You might try something like this to help with your sleep. I know there are a few people on this forum who have tried one and all agree they are very good.

Hi Lana thought I should clarify last response: I am referring to CPP Disability not Provincial. I have never applied for Provincial but have heard it is easier to get.

Hi Lana I live in BC and have applied for disability. I started the process over a year ago, denied,appealed,now am appealing to the tribunal level. I worked as a care aide for over 26 years and can no longer work due to my Fibro. Sorry I can't give you any advice except, don't give up, keep...

I have heard/read that Fibro is caused by childhood trauma/accident/stress/ etc. My chiropractor explained it as your "fight or flight" reflex is turned on high and will not shut off. I got to thinking about things yesterday and this is my thought. My childhood and early adulthood were very...

I dont know if childhood trauma figures in to my fibro. I was diagnosed 2 years ago and before that I could "fight through pain and function. As a child I was sexually assaulted from age 5 until age 14 by many family members/friends, lived in a very abusive alcoholic family.

I have Fibro and my sex life in the last 2 years has been zero. I still have the desire but the pain is what stops me and if I do enjoy some intimacy with my hubby it takes at least 2 days to recover. The other problem is my hubby knows I hurt and so is hesitant to touch me and even in the heat...